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  1. Midnattsol

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Right. With the new guidelines in Norway Canada criteria is supposed to be used, which doesn't mean PEM is necessarily considered but if data is older this problem would likely be larger? I think the study that showed 80% of those that were sent on to specialists didn't have ME came from before...
  2. Midnattsol

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Go Søraas :) Norske eksperter uenige om long covid-studie Norwegian experts disagree on long covid study Wyller again with the "biological, psychological and social mechanisms are important".
  3. Midnattsol

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Primary care in Norway doesn't use G93.3, but A04, which is not ME-specific but rather "fatiguing illness" or similar. This is a bit problematic since after 2014 (or thereabout) the new guidelines for ME/CFS says that patients should be diagnosed by their primary doctor not a specialist. So I...
  4. Midnattsol

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    I think it might be important to note that education doesn't necessarily equal high pay in Norway, and we have a highly educated population.
  5. Midnattsol

    Long Covid in the media and social media 2023

    I hope Søraas speaks out more often going forward. I think there are more than a few who have been surprised at how they are met when they try to talk about long term effects. More people to experience (albeit to a lesser extent) what patients have been living with and talked about.
  6. Midnattsol

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    I couldn't stomach reading more in Khrono about this. Not surprised there were no critical questions ;) Good to see Wyller acknowledge they keep to themselves and reference each others work. I don't see what this particular study contributes though.
  7. Midnattsol

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    The number of times people think my dad is an idiot since he enjoys working in primary industries, only to find out that he has also been an associate professor in his field... :confused: Makes me mad to think about how those that are not also associate professors are treated.
  8. Midnattsol

    ‘Electrifying’ book about women with disabilities sells for six figures - Frances Ryan book

    I also quickly default to muscle weakness and problems with restitution if someone asks what's wrong.
  9. Midnattsol

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    FaFo and Sintef will host a workshop 4th of May 2023 "to discuss how the data collected as part of the Tjenesten and MEg project can contribute to highlight the situation of those living with severe ME and their carers". The event will be streamed. Link to invitation on the project website (in...
  10. Midnattsol

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    This too. In the disability numbers and sick leave, we see nurses and teachers are overrepresented - people who were exposed to covid at higher rates than the rest of us. While there probably was some of this, especially at the start of the pandemic there were few deaths here. We've had 4000+...
  11. Midnattsol

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    With few deaths overall, finding a signal would be hard. We have generally good health in Norway, and with our hospitals not overrun like they were many other places patients could get better care since hospital staff had fewer patients to care for at a time. And with "Come back in 3-6 months...
  12. Midnattsol

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    At the beginning of the pandemic we had measures such as mask mandates, recommendations to not be more than five people from different homes/households visiting each other (children were exempt), schools and childcare were closed for a short while and when it opened there were smaller groups...
  13. Midnattsol

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    At that point in time, there were few covid deaths in Norway so this is in no way surprising. Since we also have general good heart health, deaths from sequelae like coronary disease would also be low.
  14. Midnattsol

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    I dislike having the Norwegian well renowned medical records used in this way to dismiss illness. The author linked to this preprint in the twitter thread Kalliope posted: Post-covid medical complaints following infection with SARS-CoV-2 Omicron vs Delta variants I am currently functioning at...
  15. Midnattsol

    The Philippines' 'critical brain drain' as nurses leave their home country for jobs abroad

    Same in Norway. Although I'm not sure how many are actually planning to go to Australia or other places. there have been some opinion pieces by healthcare personell where they tell about ads they get sent by companies, with pictures of sunny beaches and promises of better pay and better...
  16. Midnattsol

    News from Scandinavia

    Not in the news, but a friend of mine told me of another friend they have with ME that "nearly died because instead of getting help in the home they [the muncipality] wanted to have them institutionalized". :(
  17. Midnattsol

    Long Covid in the media and social media 2023

    There has been two relatively decent articles on the long term effects of covid on persons in Norway now, both single cases. One 16 year old girl who has developed POTS, and one nurse who has become disabled and is testing different alternative treatments (has tried HELP apheresis and recently...
  18. Midnattsol

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Joel has written a short thread in Norwegian saying that their paper does only show that the WHO definition has little validity, not that LC doesn't exist. I haven't seen a reply to questions on why Recovery Norway isn't mentioned.
  19. Midnattsol

    Long Covid in the media and social media 2023

    Apparently there are new symptoms one should use to recognize long covid: Forsker: Dette er de nye tegnene på long covid Researcher: These are the new signs of long covid Also included in the article that most people get well after six months-a year (unfortunately without mentioning it is not...
  20. Midnattsol

    Long Covid in the media and social media 2023

    Students can get sick leave, but since attendance is often not mandatory and the work day can be very flexible it can be easy to hide. For example the statistics of students being late in their education does not say anything about why as far as I know (the stats are even so bad that if someone...
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