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Is there a link to these? I’m interested because I think Ron Davis has also said that in the severe patient population from the study they did, 50% were hyper mobile (or had EDS?), but that was from a small sample.

“MRI of the Brain MRI scans of the brain were offered to all participants. MRIs were conducted in different labs and included T1- or T2-weighted scans with or without fluid-attenuated inversion recovery (FLAIR) with a section thickness of 3 mm. Scans were assessed by an experienced radiologist...

I was more referring to the fact that the radiologist could be blinded as to who the person was and also, whether or not they had ME/CFS or were healthy. But this is only possible in a control-matched study. In this study, the radiologist and those checking the scans presumably knew that the...

I think the point of the blinding is that bias could have an effect on how the scans are read by a radiologist, and the measurements that are taken.

Thanks. Earlier in this thread based on your pre print there’s been a few pages of discussion. I was wondering whether you plan to do a study which is blinded and which will have control subjects? Although you refer to what values in healthy people may be, there aren’t actually matched controls...

I’m confused Is this the same paper that’s been discussed earlier in this thread? That was published in 2019?

I agree Tia. I can see also why patients find that it makes sense. I also developed intolerances / allergy symptoms a few years into ME. But they could have developed anyway. I don’t know. I think for some ME patients, they get disbelieved by doctors as to their new symptoms, they don’t get any...

Jen Brea herself knows that the research isn’t there, but is still ok with it: I think this is the worst thing. But in any case, it’s not a legitimate excuse. Covid happened in 2020. But surgeons haven’t even provided controlled studies into traction - and for using the measurements they...

Thank you for your reply in the thread. Please don’t feel any rush to reply or even to reply if you can’t but just writing my thoughts down. I hope that you get some relief soon. :hug: So the difference between anaphylaxis / allergies and MCAS, is that in MCAS, the skin prick tests are...

It’s interesting you say this because this is what I was thinking too, from reading about it. But I don’t want to dismiss people who are having symptoms of MCAS because I do believe they are definitely suffering from some sort of allergic condition -allergies, asthma, hives - all of which can...

What is the proof that ME or even the CCI she describes is “mast cell mediated”? I always meant to start a thread on MCAS but never got round to it. What does it mean to have MCAS? Is it a separate entity on its own or rather is it a term for those who suffer frequent allergic reactions? If so...

Yes - here https://www.s4me.info/threads/video-science-for-me-q-a-with-dr-michael-vanelzakker-oct-2019.11791/ michiel tack has posted a summary later down the thread too. I haven’t watched the talk for a while but I remember being surprised at the change.

Dr Van Elzakker seemed to completely change his mind later on, in another talk (I think it was the one hosted by Andy from this forum).

And that’s just the official cases. I think ONS shows numbers are holding steady at around 4,000 new cases a day. (28,000 new cases a week).

This might explain why.. famotidine is being bought up by people as it is being looked at as a possible treatment for Covid! It looks like this was known about in April, and it’s August now; and there’s still a supply problem which I presume is most likely related to that...

Just an update, Ranitidine is not currently available over the counter in the U.K., as far as I can see, and is still withdrawn. I asked my GP to switch me over to Famotidine. They agreed and prescribed it however, none of the pharmacies or online pharmacies have it in stock. There’s a “supply...

From what I know, 200-400mg is a daily dose for lupus, depending on body weight. 400mg (I think) once a week is or used to be used as a preventative for malaria. But if someone actually had caught malaria, 800mg was often used (for a day? Or for a few days) to treat the parasite. So that’s...

This really worries me as I’m due to go into hospital soon and I’m taking double dose PPIs (twice a day). I was thinking of reducing it to once a day anyway (I’m not actually monitored for these properly by any doctor, I was just told about 7 years ago that I can take them when I need them...

Yes me too. It gets so overwhelming and particularly when I talk to people, “I can’t, I’m too tired”, “I’m too tired to brush my teeth”, “I’m too tired to talk”. I say this all the time. My family knows what I mean. And from the beginning I said to my GP I feel so tired, so Ill. It’s hard to...

@Mij just a quick note.. you keep referring to me (Lunarainbows) but it’s actually someone else with a similar-ish username, @lunarswirls :p