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Presumably replication also means replicating the technology, not just the results. Or am I saying nonsense?

Really? And he didn't mean us patients?

https://sci-hub.se/https://doi.org/10.1073/pnas.1901274116

Wessely seems a little sour and a little too eager to distance himself from the "all in the mind" position (in the SMC expert reaction).

I'm being very gentle when I use the term "CBT/GET ideological brigades" with a nod to Tuller. I really want to say: the psychobabble mafia, the CBT/GET fraud cartel, or something similarly unkind. The sum of the harm they've done over the last 25 years is incalculable.

I was initially worried that we wouldn't make it but we did! It is clear that the community has decided that if we have to hire our own investigative journalist to deal with the CBT/GET ideological brigades, we will.

I was offered a dug to treat POTS but declined because it seems that drinking a lot of salt water, compression socks and paying more attention to avoiding excessive orthostatic stress is enough to bring symptoms down to a bearable level. Also because the drug hasn't even been tested for POTS...

This was a study about depression in pediatric CFS. Sounds like the recruiters were tired of the constant recruitment into studies and don't see much value or need for the study in question. “there is a danger of getting research overload so I think it suffered a bit because it came on the back...

It's gone. They had a premature publication.

$4044 to the goal. Edit: math is hard.

What I understood about their findings (not a transcript, just a quick and dirty summary which might contain errors): Complex V is operating less efficiently, but basal oxygen consumption is not much different. This indicates that the cells are able to compensate when at rest, but ATP synthesis...

After watching this yesterday my question is, would the complex V problem explain why there is a limit to how much we can do? I can exceed this limit, indicating that the ability to generate energy is there, but there will be a price to pay in the form of a crash that forces me back to lower...

Mady Hornig has given $800. Wow!

Most illnesses at some point in history had an unknown mechanism that probably made little sense to anyone. "They are converting psychological distress into physical symptoms" is the modern equivalent of "They are sinners and the illness is God's punishment". People with unpleasant health...

If you can't explain it, that means you can't explain it. It doesn't mean that you have gained evidence that these symptoms have a particular cause.

This part is really good! It shows the data doesn't support the beliefs by CBT/GET proponents, who just ignore it and continue to talk about perfectionism and fear avoidance and so on.

I'm less enthusiastic about the suggestion that clinical trials of CBT for CFS that obtained good results must have involved misdiagnosed patients that really had depression and not CFS. There are other possible explanations and we don't really know the reasons. It is not unusual that early...

I think this paper is very valuable because it allows outsiders to understand that the objection isn't to psychotherapy in general but to a specific psychogenic theory. The CBT/GET proponents, when criticized, also like to deny that their model is a psychogenic one, and it's good to be able to...

So patients are told they must not worry... and then the authors measure how much patients worry and declare the treatment a success when patients do in fact give responses on questionnaire that indicate less worry. This is just an exercise in social control, isn't it?

I'm now slowly coming out of long crash. I now struggle to handle the same walking distance I could easily do before. The other day I fell asleep for hours afterwards out of sheer exhaustion. I don't know what cytokine cascade would feel like but maybe not like this? It feel like there is a...