Is this blog a summary of an article somewhere else or is that just a mistake in the description?
Maybe I should write a reply? Or maybe leave it alone?
Several of the leaders of the psychosomatic wing are now jumping off the ME train with the reason that they’re bullied by the patients. This claim was examined in England, and no grounds for such accusations were found. The truth is rather that many of them realise they’re on a sinking ship and...
There is something odd about access to this. I cannot get it through my college account. I would have to use something called Athens that I do not have a registration for.
Yes, there is a problem here.
The textbook prevalence of EDS is 1/5000. The recent UK Biobank work seems to have turned up a self-reported prevalence of 1/4000. So that is well within expected uncertainty. But the article is suggesting 1/24. Something is adrift here.
I also do not quite...
Sorry @JenB but you are illustrating just how little you understand about this.
Is a dog clearly distinct from a cat?
Are their features non-overlapping? Of course not. They both have four legs, but the shape of the leg is always rather district. The both have two eyes but the retinal structure...
I think the department of medicine at UCLH formed a fairly good idea of why these treatments are so controversial today. They seemed to readily accept the answer that the treatments have not been shown to work and probably do not work very well if at all.
The authors here are perspicacious...
Just to note that I presented my thoughts about trials of therapist-delivered treatments for ME and MUS to the department of Medicine at UCLH today. The session seemed to go well and comments were positive. Nobody disagreed with my analysis. I do not expect any immediate spin off from this but...
The discussion so far seems to me of interest. I may not have worded the opening post perfectly but I was sort of being devil's advocate.
Clearly we are talking about the wider phenomenon of systematic expectation bias plus all the other factors that make people seem to improve in trials like...
Dear @JenB,
I think this is the problem. You are not a skilled neurologist or a neuroscientist so you are unaware of the many inconsistencies in the explanation for your story that you and Jeff are proposing.
Biomedical science is not just talk using biomedical terms, it is about explanations...
Just a few more comments.
My take on the assessment of outcome is that it is very surgical and likely to be over-optimistic about some things. I note that several patients had further surgery - probably as a knock on effect of immobilisation affecting levels further down. He finishes off with...
Interesting video @Sly Saint.
Henderson comes across as a typical surgeon of a reasonably cautious type. His account of hEDS and the spine problems is very much parroted from the books and old school style. There is a conspicuous absence of a 'fresh critical eye' in his presentation but that...
I can't work out what your post is about @Tilly. You mention neurology and lungs but you quote me mentioning mast cells in arthritis. Mast cells have nothing of interest to do with arthritis.
There is an upsurge of blather about all sorts of things these days, and an acceptance of blather too...
I think the important thing to remember here is that a skilled neurologist does not simply tick boxes for speech or vision problems.
When I was a student I had a flatmate whose holiday job was checking potato fields for plants the wrong variety. After a week of intensive training he could tell...
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