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@Invisible Woman what are these dog cooling mats? I never heard of them will have to investigate

I use doxylamine succinate 25mg, the brand i use is kirkland sleep aid. i bought it from the US but i dont know if it's available on it's own in uk. Its an old fashioned anti-histamine like the non-herbal version of nytol (which is diphenhydramine) but i find it much more effective than that. It...

loving all those suggestions @MSEsperanza

I think she needs to go back to being JE's trainee. From her presentation - I know i shouldnt less this ignorance upset me but the cold cruelty of it cuts deep. All that i have lost, the horror and pain of being ill & disabled, the daily griefs of being excluded and unable to live as the...

continually touching them isn't a good idea anyway, they are being unwise when they do that imho - unless your hands are scrupulously clean you could just be putting virus particles off your hands & onto the mask... ready to be inhaled, or just deposited onto your face from the mask, or even...

Same for me.

Why do we have difficulties avoiding excessive exertion? I'm surprised you ask! Do you not know that it is that pesky kinesophobia, our fear/phobia of movement that causes us to do so much?! Surely you have been around long enough to know that. Sorry @strategist :whistle: I couldnt resist...

Oh for goodness sake. these will be the ones that "up to 30% tested negative, proving that it was unhelpful beliefs causing their symptoms" 'err.... cough.... but the test is only about 70% reliable'.......... 'stop with your activism & harassment, we are being forced to leave the field!'

Response to a deleted discussion of a deleted tweet. As i recall, PACE & FINE were definitely described as 'sister' trials back in the late naughties. Sorry i dont have a ref for that but i do remember it being 'common knowledge' at the time. So someone in the FINE arm could quite easily have...

From the above document Just shows how utterly ignorant she is about the experience of having a not-yet-proved-organic disease. People dont generally consider people with ME brave, despite the reality of them being so, precisely because of the shite that people like you peddle! What kind of...

This. Friend: "well why did you do that Jem? That is so obviously too much why did you carry on/do that extra thing when you know it makes you ill?" Me: " Well because by that time i was too confused/disoriented to recognise the signs to stop/not do it...

So he's retweeted an article containing a link/recommendation to Nina Muirhead's course? hehe i'm guessing that was inadvertent ;)

They also often speak at full volume as the norm, shout and scream... a lot!

This Also here is my 'twopenneth' Pacing, it's ruddy awful, takes huge self control & is a right pain in the arse. But essential. You need a lot of will power to resist doing what you really want/need to do. It's been nearly 20yrs & i STILL find it hard to resist the idea that i can just...

eww :sick: reading those quotes again makes me feel sick. One forgets how bad it was. I mean not forgets of course, i know very well how bad it was & is, we're all living it, impossible to forget. But when you read it again after a few yrs... ugh it makes my blood run cold. My goodness when...

@strategist Sorry I didnt feel comfortable answering the poll because none of the 3 answers fit. I think eating often improves things slightly for me, but it's short lived & doesnt last. I wouldnt say the improvement was 'significant & lasted for some time', that's not accurate for me. But it...

oh man i am hearing you on that!

As i understand it G93.3 is the code from the WHO's International Classification of Diseases - the ICD(10). CG53 is NICE's own 'Clinical Guideline' number 53 - on the diagnosis & management of CFS/ME 2 totally separate things.

Eeeewww:sick::cautious:

my bolding :rofl::rofl::rofl: you do make me laugh so much sometimes @Wonko