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  1. Andy

    Treatment and life goals among veterans with Gulf War illness 2023 Sullivan et al

    Abstract Medically unexplained syndromes (MUS), also termed persistent physical symptoms, are both prevalent and disabling. Yet treatments for MUS are marked by high rates of patient dissatisfaction, as well as disagreement between patients and providers on the management of persistent physical...
  2. Andy

    Protocol Motivational interviewing intervention for increasing physical activity and improving dietary behaviors:The [LIFT] protocol 2022 Kinnett-Hopkins et al

    Full title: Motivational interviewing intervention for increasing physical activity and improving dietary behaviors: The Lupus Intervention Fatigue Trial protocol Abstract The Lupus Intervention Fatigue Trial (LIFT) is a prospective, randomized controlled trial to assess the effectiveness of a...
  3. Andy

    Review Exploring the arcuate fasciculus from a clinical perspective 2023 Shao et al

    Posting as mentions CFS, but nothing of much consequences as far as I can see.
  4. Andy

    Review Exploring the arcuate fasciculus from a clinical perspective 2023 Shao et al

    In recent years, language function impairment caused by intracranial diseases has gained increasing interest, mainly due to its significant impact on the language and cognitive ability, leading to a serious decline in the quality of life of patients. Consequently, researchers aimed to clarify...
  5. Andy

    Long Covid Clinical Severity Types Based on Symptoms and Functional Disability: A Longitudinal Evaluation, 2024, Sivan et al

    This team are so determined not to talk about ME/CFS - there is no mention of it at all other than obliquely. "There is established evidence for PEM or PESE in the literature as a hallmark finding in LC and other post-viral illness. Relapse can be triggered by physical, cognitive, or emotional...
  6. Andy

    Article: UK Biobank sequences the whole genome of all their 500k participants

    Genetic data on 500,000 volunteers in UK to be released for scientific study "A new era of medical discoveries, treatments and cures is on the horizon, researchers say, following the announcement that an unprecedented trove of genetic information is to be made available to scientists. Health...
  7. Andy

    Article: UK Biobank sequences the whole genome of all their 500k participants

    "In a momentous landmark for medical research, UK Biobank has today [Thursday 30 November] unveiled incredible new data from whole genome sequencing (1) of its half a million (2) participants. This is set to drive the discovery of new diagnostics, treatments and cures and, uniquely, is available...
  8. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $65,481, 100% of target 21 hours left https://crowdfund.berkeley.edu/project/40018
  9. Andy

    First insights into multidisciplinary and multispecialty long COVID networks—a SWOT analysis from the perspective of... 2023 Stengel et al

    Full title: First insights into multidisciplinary and multispecialty long COVID networks—a SWOT analysis from the perspective of ambulatory health care professionals Introduction: Multidisciplinary and multispecialty approaches with central integration of primary care, individualized long-term...
  10. Andy

    Preprint Interpretable Inflammation Landscape of Circulating Immune cells, 2023, Jiménez-Gracia et al

    Abstract Inflammation is a biological phenomenon involved in a wide variety of physiological and pathological processes. Although a controlled inflammatory response is beneficial for restoring homeostasis, it can become unfavorable if dysregulated. In recent years, major progress has been made...
  11. Andy

    Identifying Digital Endpoints For Fatigue To Drive Better Clinical Care And Treatments

    Project website here, https://idea-fast.eu/ We have a thread for one of their publications, Assessing fatigue and sleep in chronic diseases using physiological signals from wearables: A pilot study 2022 Antikainen et al It is noted in the above thread that one of their exclusions is CFS.
  12. Andy

    United Kingdom: Sussex & Kent ME/CFS Society News

    Both those links are to the same study, which is discussed here, Effect of the subjective intensity of fatigue and interoception on perceptual regulation and performance during ...activity, 2022, Greenhouse-Tucknott
  13. Andy

    Review Brain-regional characteristics and neuroinflammation in ME/CFS patients from neuroimaging: A systematic review and meta-analysis 2023 Lee et al

    Highlights Neuroinflammation is the most convincing hypothesis for ME/CFS pathophysiology, explaining its multifaceted symptoms and pathological features. Across various neuroimaging techniques, including MRI, MRS, PET, and EEG, the frontal cortex was the most frequently observed region. Our...
  14. Andy

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid proteomes 2022, Schutzer et al

    Clinical specimens for this study A total of 15 and 15 subjects were included in the CFS-only and CFS + FM groups, respectively. They were diagnosed as reported [Citation7]. Thus all subjects fulfilled the 1994 case criteria for CFS [Citation8] as modified by BHN to include severity: Patients...
  15. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $61,912, 95% of target 1 day left https://crowdfund.berkeley.edu/project/40018
  16. Andy

    Outcomes of a fatigue management intervention for people with post COVID-19 condition 2023 Tadhg et al

    Abstract Objective Fatigue is identified as one of the most prevalent and persistent problems reported by people with post COVID-19 condition that negatively impacts on everyday living and resumption of pre-COVID-19 lifestyle. A pilot occupational therapy fatigue management intervention was...
  17. Andy

    Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al

    Tweet in the post above is first in a thread explaining why someone on Twitter thinks this questionnaire is really good.
  18. Andy

    Closed ‘The Index of ME Symptoms (TIMES)’, developing a clinical assessment toolkit for ME/CFS

    Developing a clinical assessment toolkit for people with ME/CFS and clinical services. Part 1: The Index of ME Symptoms (TIMES) We are asking adults who have been diagnosed with myalgic encephalomyelitis (ME) (also known as chronic fatigue syndrome (CFS)), including those whose ME/CFS was...
  19. Andy

    Catalytic Antibodies May Contribute to Demyelination in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Jensen, Davis et al

    Here we report preliminary data demonstrating that some patients with myalgic encephalomyelitis/chronic fatiguesyndrome (ME/CFS) may have catalytic autoantibodies that cause the breakdown of myelin basic protein (MBP). We propose that these MBP-degradative antibodies are important to the...
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