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Well, that is a huge generalisation for starters. While some people will have that experience, others will gain understanding about their condition from their diagnosis, and as noted in the post above it can be vital to some. It can also be important for 'political' reasons - if people who meet...

Abstract Background The economic impact of managing long COVID in primary care is unknown. We estimated the costs of primary care consultations associated with long COVID and explored the relationship between risk factors and costs. Methods Data were obtained on non-hospitalised adults from...

The next MitOx event will take place April 12th 2024. Organised by Karl, this was described last year as an "annual meeting packed with short talks and posters on cancer metabolism, neuroscience, diabetes, mitochondrial disorders and general mitochondrial biology. This one day hybrid conference...

Background: Chronic fatigue syndrome (CFS) is a global public health concern. We performed this systematic review of randomised controlled trials (RCTs) to evaluate the effects and safety of traditional Chinese mind-body exercises (TCME) for patients with CFS. Methods: We comprehensively...

$50,134, 77% of target 7 days left https://crowdfund.berkeley.edu/project/40018

Abstract Some fibromyalgia (FM) patients engage in rumination (i.e. a chain of repetitive, passive and relatively uncontrollable thoughts focused on negative content) to cope with the pain and discomfort of daily activities. The partial model of rumination in chronic pain suggests that...

Posted.

$46,510, 71% of target 8 days left https://crowdfund.berkeley.edu/project/40018

9,561 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Link to Simon M's blog about the research: Remarkable researchers hunting for ‘something in the blood’ of people with ME "In this research we are looking at microclots in the plasma of ME/CFS patients and healthy controls and we will conduct experiments to look at the effect of patient serum...

"The Opportunity: The post holder will be responsible for undertaking statistical analysis of genetic data, using and developing case-control genome-wide association study (GWAS) designs. The purpose of this is to delineate the contribution of genetic variants to Myalgic...

Discussing content from Calabrese previously: Biologic and Nonbiologic Interventions for Fatigue in Rheumatoid Arthritis (2019). Calabrese. Long COVID: defining the role of rheumatology in care and research (2022) Calabrese et Calabrese Rheumatology and Long COVID: lessons from the study of...

Appears to be a response to Long COVID: a new word for naming fibromyalgia?, 2023, Xavier Mariette

Abstract Long COVID is a diagnostic label currently given to those suffering from a poorly understood state of incomplete recovery or who have development of a myriad of medically unexplained symptoms occurring in the wake of infection with SARS CoV-2 that is both poorly understood and...

Full title: Clinical outcomes, medical costs, and medication usage patterns of different somatic symptom disorders and functional somatic syndromes: a population-based study in Taiwan Background Somatic symptom disorders (SSD) and functional somatic syndromes (FSS) are often regarded as similar...

Trial By Error: Column in Time Magazine Calls for Halt to Biomedical Long Covid Research "Time magazine recently published an opinion piece that calls for an end to biomedical research for long Covid—based, it seems, on what the authors view as the ME/CFS precedent. The title: “How to End the...

9,552 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

$43,113, 66% of target 10 days left https://crowdfund.berkeley.edu/project/40018

Perhaps in America, I'm not so sure elsewhere.

Well, in effect they are doing that, but clearly the magic happens when a 'very clever person clearly worth their funding' assigns numbers to particular answers, because they then can declare that they can 'accurately' measure the level of distress to each person.