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Study Overview Brief Summary To further characterize Long COVID-19 by collecting data from individuals who already own wearable devices or are provided with a wearable device along with basic and enhanced educational materials to determine if both can improve Long COVID-19 symptom management...

Study Overview Brief Summary Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and...

Study Overview Brief Summary This is a single-center, prospective, randomized, double-blind (pharmacotherapy), placebo-controlled, and comprehensive rehabilitation phase II clinical trial to determine the usefulness of pregabalin in a new indication (post-COVID chronic fatigue syndrome)...

Link to Clinical Trials website for reference, https://clinicaltrials.gov/study/NCT05719493

Study Overview Brief Summary It is a one-arm open-label interventional study with transcranial direct current stimulation in an remote home-based setting with the aims to evaluate the feasibility (usability of the device, compliance of patients, usability of the teletherapy), the effectiveness...

Study Overview Brief Summary The study seeks to delve into the firsthand experiences of patients diagnosed with chronic fatigue syndrome who partake in a separate clinical trial featuring a specific medical intervention. The primary emphasis will be on meticulously tracking the rates of trial...

Study Overview Brief Summary Chronic fatigue syndrome (syn. myalgic encephalomyelitis or ME/CFS) is a relatively common, but pathogenetically still insufficiently understood, complex, severe, chronic disease. It has been classified by the WHO as a neurological disorder (ICD-10 G93.3). The...

Study Overview Brief Summary This study will be building on the findings of Kalfas et al 2022 paper exploring the prevalence of generalised worry in patients with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) before and after Cognitive Behavioural Therapy (CBT). The research was...

Study Overview Brief Summary The goal of this clinical trial is to evaluate the therapeutic value of an approved drug (Vericiguat) in patients with post-COVID-19 syndrome, who suffer from profound tiredness or fatigue, regardless of bed rest.The main questions it aims to answer are: • Does...

Study Overview Brief Summary The Munich cohort study MUC-CFS aims at the characterization and long-term follow-up of myalgic encephalitis/chronic fatigue syndrome (ME/CFS) in young people aged up to 25 years, as well as at the identification of pathomechanisms, biomarkers, and targets for...

Study Overview Brief Summary The objective of this observational study is to document symptom progression in 60 patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) who undergo Hyperbaric Oxygen Therapy (HBOT) following COVID or other infections. Participants will receive...

I'm surprised that they openly admit this "Their aim is to improve the current symptom-based diagnostic criteria that are insufficiently validated"

Funding page for the project, https://cordis.europa.eu/project/id/956673 "A new era in functional disorders research Functional disorders (FD) comprise conditions with chronic somatic symptoms that cannot however be associated with specific pathophysiological mechanisms. Although FD affect...

$15,204 raised, 23% of target, 22 days left https://crowdfund.berkeley.edu/project/40018

9,395 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

9,334 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

$12,134 raised, 18% of target, 23 days left https://crowdfund.berkeley.edu/project/40018

Abstract In neurological practice, we take pride in accurate diagnosis and using neuroscience to develop novel disease-modifying therapies, but we sometimes neglect symptom management and the treatment of distress. Most patients with neurological disorders report that their mental health needs...

Thanks. Honestly, it's not worth being in a separate document. The full text is INFORMATION FOR STAKEHOLDERS Development of a Delivery Plan on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 6 November 2023 The purpose of this publication is to provide information about work to develop...

Boris Johnson may not believe in it, but long Covid is real – and underfunded Danny Altmann "Among the more sobering moments at the UK Covid-19 inquiry over the past few weeks was the palpable dismay and affront shown by the mild-mannered NHS respiratory consultant Prof Chris Brightling, when...