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That link doesn't seem to work for me, @Amw66 – I wonder if the page has been moved. Just in case others find the same, I thought I'd repost it. https://www.theguardian.com/society/article/2024/aug/23/fifth-patients-two-north-england-surgeries-long-covid-study-finds

You're obviously all looking in completely the wrong places. I mean, how hard can it be? https://ebps.org.uk/publications/

And me.

I got the impression it did help. But adding salt to your meals tends to make you want to drink more, so it could just as well have been that.

Imagine an industrial-size tumble dryer full of paving setts. My last one was just before the pandemic, so I don't know about the early bit.

:laugh: Reminds me of the LBW tray I had in the 70s, which held anything requested by men who'd used sexist tropes or comments. Let the Buggers Wait.

Does it cause an increase in fluid volume somehow? That's what the heart heath/blood pressure charities seem to say, but I'm a bit unclear about it—it isn't very obvious whether it's been established, or is more a theory about how high sodium intake and hypertension are linked.

Excellent! A shower gradually turned up to as hot as I can bear it works for me temporarily, but pressure is even better. The pain's from getting up from a sitting position, so only my thigh muscles that are affected—sleep would be a lot easier if my mattress had a face hole in it like a...

1. The name and address section. 2. It should detail the care and support I will be offered. 3. Medical care and social care.

It does look interesting, thanks for going through it and highlighting those sections.

I'm also concerned their response to any criticisms might be "We made it available, but you don't have to use it if you don't like it." A bit like complaining about sexist and racist jokes in TV programmes in the 70s, and the response being "Nobody's forcing you to watch it."

Maybe we should offer them of a list of words that should never be used by health professionals, because they imply beliefs that make them look a bit Aleister Crowley. Possible entries on the ME Enochian Magic List: Care Collaboration Plans Treatment

Apart from the asthma plan, none of them are medical care plans either. This is supposed to be for healthcare professionals in medical settings. Nobody has time to look at this stuff, not even in primary care. For many patients, they have what they need in the summary record—age, sex...

I did the same, and even though I don't even have a lot of caffeine, there it was when I stopped. It takes two or three days to feel the full benefit, because there seems to be a bit of a hangover from previous consumption. For me, the biggest impact is on muscle burning at rest, not during...

That's the key for me. I have ME rather than FM, but the burning is the result of exertion and the best thing for it is rest. Unfortunately I can't rest it away entirely, it comes back. It's just not as bad on rested muscles as on ones that have been used on consecutive days. If it's worse in...

He was a nice fella, took the short document, said he'd read it, and that the flags were a good idea. My appointment was about my newly-developed psoriasis, though, and that's what we mainly focused on. I'll have to see whether it appears on my records—I suspect the practice admins do that...

Exactly—the only sort of care we're likely to get is for things other than ME/CFS, so the best way to complete a care plan is to say in brief how it (and any other long term conditions) affect us and what our needs are as a result. Anything else is just performative, and doctors aren't...

This'd be problematic for people who have relapsing/remitting ME, though. That's been my pattern since onset, and it'd be difficult to describe temporary relapses as deteriorations, if other pwME use deterioration to mean permanent or very long term. Relapsing/remitting is used in some other...

For anyone considering writing a letter, one of the things it's worth looking at is the background information about the NICE guideline. This refers to care plans being created for people attending NHS specialist services. I don't think it says anywhere in the care plan that it would only be...

It's about as bad as it could be, isn't it. Do people think a very brief document about a patient's status would be useful for GPs, though? I don't mean a care plan—there's no care available, and I wouldn't sign anything suggesting there is—but I've moved GP surgeries recently and I can see...