Search results

Yep, the cognitive impairment can be more disabling than the inability to walk. I had to give up work because it's almost dementia-like in compounded PEM and there's no wheelchair option to help get round it. When you can't follow a two mile route you've been taking for 30 years, or remember...

I've only had notice from the GP surgery about 'flu. That's booked in for next week, but if they have Covid jabs in stock by the time I go, I'll probably have them both. I've booked the 'flu jab to avoid a couple of social things, as I now get the sort with the special adjuvant for wrinkly old...

Exactly the same. It's somewhere between uncomfortable and downright painful when I stop moving. But of course moving my legs all the time makes the pain much worse when I reach the point where I can't avoid lying down. My quads are far worse than my calves for both weakness and pain, so it's...

Excellent, thank you!

Yes, that's true. I get the same urgency @JemPD describes when sitting up, except for me it only happens when standing. For her it can only be relieved by lying down, for me sitting down will do it. Before I got the wheelie I'd black out if I tried to stand in a queue, so I had to sit on the...

Just looked it up, and yes. It's being sold to pharmacies for paid-for vaccinations. Vaccination is free to anyone qualifying for the NHS booster programme, so that's what I'll be doing—though if I didn't qualify, I'd at the very least be looking up how much the private service costs. I spend...

I've just booked in my Covid booster, but in the UK we don't usually know which vaccine we're getting till we turn up to the appointment. Even the pharmacist doesn't know until the supply arrives, they dispense whichever gets delivered to them. I don't think it's usual for them to have more...

I've always reacted badly to simple carbs since getting ill, so I find this an interesting idea. Trouble is, the sensors only last a couple of weeks and they're very expensive, so they're not easily accessible. I know my long term blood glucose pattern's okay because I have regular HbA1c...

That's a really important question. I used to think it was probably the case, but now my instinct's against. It seems very likely that repeated overexertion can cause worse (sometimes drastically worse) ME/CFS, at least in susceptible individuals. I'm less convinced it could actually trigger...

Once the initial virus was cleared, did you get the immune-type symptoms if you overdid it? Hard swollen neck glands, sore throat, runny nose, faulty temperature regulation, low grade headache? There's probably a distinction between that and the common post-viral thing of feeling as if you...

It does sound as if there's a severity thing going on, doesn't it? I've asked the two people I know personally with ME/CFS, and neither of them frequently lie down during the day. It sounds as if one of us does it a bit more than the others, but she's the only one that gets migrainous headache...

I'm moderately affected, but except for sleep I almost never lie down due to ME/CFS. This is partly driven by the muscle pain ME causes. Just having to go to the bathroom several times a day is enough to over-use my legs, and they're are at their most painful (deep burning pain, pins and...

So is that barista coffee without any coffee in it?

Further notes: There's an ID check when applying for UC. Possible ID documents are bank debit/credit card, driving licence, passport, payslip, P60, but there may be others.* You have to set a UC account up before you can claim, and the process includes verifying your email address and mobile...

Another salient point is that there's a five-week delay built into UC, but the legacy benefits will run on for two weeks after the claim ends. So effectively there's a three-week gap with no income, rather than a five-week gap. As everyone on income-related ESA will have to make the move to...

This paragraph (which I can't seem to copy and paste) might be of interest to anyone receiving income-related ESA, with or without housing benefit, who's wondering when the migration to UC may start.

Thanks, @Sly Saint!

The link just takes me to the general Sky website, and I can't find it as a story. It's one of those sites where if a Search function exists at all, they hide it pretty bloody well.

Another irony is that stores can dump temporary displays anywhere that will nicely prevent wheelchair access, but chairs? No way: fire hazard. We weren't allowed to put them out, on pain of disciplinary action, in the public building where I worked for the same reason. I doubt you'd get public...

@Jonathan Edwards – do you think researchers, especially those in the relatively early stages of their careers, get enough training in making funding bids? Not only how to go about it on the various schemes, but how much time it takes, what resources are needed? My fundraising was in a totally...