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That's brilliant news! I hope it gets confirmed and accepted, it'll make a difference to a lot of women. I'm pretty sure mine's inherited (via my dad, who of course didn't have it), as my grandmother, aunt, and great grandmother developed it.

https://www.theguardian.com/science/2024/feb/03/the-situation-has-become-appalling-fake-scientific-papers-push-research-credibility-to-crisis-point

From @MSEsperanza: It seems this BMJ review from 2022 has received no thorough published critique yet -- at least nothing linked on the Altmetric page, and on the BMJ article only two endorsing responses. However, 2 references on wikipedia and 81 citations in medical papers. Altmetric –...

Absolutely fecking not! They need to do something about this. Why should people be encouraged to waste energy they don't have on therapy that might be useless at best and dangerous at worst, especially if the therapist knows nothing about PEM and starts encouraging them to "think positively"...

If you got your result via an NHS LFT, you can still register it (I reported both my recent infections). They don't accept results from privately bought tests, though, it's only the ones issued by the central service. https://www.gov.uk/report-covid19-result

Yes, they are. I've been on it since April 2020 and am still submitting test results every month.

Usually when the ASA make a judgement that something breaches the code, they expect the broadcaster to stop running the ad. Since this wasn't a conventional ad and is unlikely to go out live again, I guess it'd be limited to BBC iPlayer content? The ASA wouldn't have the power to make a...

Maybe the address got put on the TisBest mailing list when I did it last time, and they occasionally send out gift cards to a random selection of people? Though it did mention Ray Dalio again (see text from the offer email below), so I guess it's possible it somehow got duplicated from the...

Pretty sure not. The email was from the same domain as the last one (I always check when something unexpected arrives), the link took me to the same website, the charity number you gave in post #2 above worked in the search box, the process of allocating the donation was the same, and I got an...

I got sent another one of these earlier, and have donated it to MEAction again. The email from the foundation confused me because I'd forgotten all about it, thinking it was a one-off thing!

Well, except that it linked ear seeds with recovery from ME. None of the low-cost suppliers could get away with that because they have to abide by the rules. This business gained a huge competitive advantage over them by calling it entertainment instead of advertising, and doing it on the BBC...

This. I don't blame the young woman involved, who for all I know sincerely believes her ear seeds brought about her recovery. I don't even have a problem with acupuncture. It's the provision of advertising of a quality and impact that can't be bought for love nor money, free of charge and...

From that exchange, it sounds more as if he's congratulating her for being determined to do the couch-to-5k challenge or lose weight. Just think what we could achieve if we were better, more deserving people!

"...and no, we're not going to explain why we're doing it. You're not in our special club."

Good reminder! A lot of disabled people who're unable to claim PIP because they're no longer of working age don't realise they could claim this instead.

Exactly. Due diligence done afterwards, not before; and even then, not by the broadcaster. They think it's fine to light the blue touch paper and stand well back.*

Even if they do, the BBC seems to be wilfully ignoring the fact that (a) sick people are very vulnerable to exploitation, and (b) people with poorly understood conditions are often gaslit by everyone from their own family to their doctor, so it's profoundly unhelpful to suggest recovery is easy...

I agree with most of what you've said, but I think this would be problematic. It's such an overwhelming part of the experience, especially for people who're undiagnosed. If people are brain fogged—and they may not know they are, let alone have a useful word for it—feeling tired, fatigued or...

There's also an update on the page about the migration of claimants from income-related ESA to Universal Credit: Four years is a long time away, and given the DWP's history of serial postponements and the possibility of a change of government before then as well, it offers a bit of respite...

I would, except that they've already stated they're sending the same response to everyone (see the letter that @tornandfrayed posted in #211). It's a waste of time and energy unless someone with more clout gets involved.