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  1. Kitty

    Air Fryer worth it at all for someone with severe ME?

    My diet's based almost entirely on batch cooked food—curries, stews, chilli, pörkölt, tagine, ragù, etc. I've hesitated to include one of my cooking methods because it would be unsafe in some homes. But here goes anyway, because people have common sense. I have a small, portable induction hob...
  2. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    There's also the fact that, even if these changes go ahead, the substantial risk category appears to be retained. And if it is, benefits advisors will be able to work out how claimants can engage it. Bizarrely, though, it mainly applies to people with physical illnesses and disabilities. It may...
  3. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    An article from Benefits & Work today: https://www.benefitsandwork.co.uk/news/has-the-dwp-already-stopped-reassessing-support-group-and-lcwra-claimants
  4. Kitty

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    Yes, I've developed a tic that's triggered by acronyms, thanks to British psychosomatic research.
  5. Kitty

    Does anyone use/have a parcel box for deliveries?

    She might be 84 and crippled with arthritis, but nowt much gets past her! :laugh:
  6. Kitty

    A thought experiment

    I definitely want to know more about the synchronised astrology! :laugh: You all make good (and serious) points, though.
  7. Kitty

    Does anyone use/have a parcel box for deliveries?

    I bumped onto the woman who lives at the end of our close today. One day I had to drive down to the turning head to reverse my van because of a delivery lorry , and I noticed she had one of these black bins tucked away behind the ones for recycling and rubbish...
  8. Kitty

    Does anyone use/have a parcel box for deliveries?

    I haven't, but I wonder if some of my deliveries would run into problems because they insist on taking a photo with the door open. It ought to be obvious that this could be done with a parcel box, but I wouldn't have much faith in some of our delivery drivers. They can fail to notice a note...
  9. Kitty

    Air Fryer worth it at all for someone with severe ME?

    My cousin, who has no disabilities, had much the same experience as @Wonko. She gave it away and bought a tabletop combi-oven that microwaves, grills, and has all the different functions of a conventional fan oven—it's just smaller and more economical for a single person to run. She says it's...
  10. Kitty

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    I've applied for the study and been invited to give a sample. I've got a date booked for this week, have sent in the info needed to book disabled parking, and received information on how to get there. So I've now just got get there without employing my superpower for getting lost, which works...
  11. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I was only on DLA mobility for the first few years of the claim, but as Jem says, they probably would have been able to see that. In some ways it's odd that they put me in the support group just on those grounds, as I'd worked full-time for 12 years while receiving DLA mobility. I had to stop...
  12. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Thank you. First one went okay; the assessment was gruelling and far too long, but I got a higher award than I'd realistically expected. There's more hanging on this one, though, as I'll be less than a year from state retirement age by the time I know the outcome. You can't claim PIP after...
  13. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I don't, but I've been on ESA for almost 10 years and haven't been reviewed. It doesn't necessarily make life any more comfortable; I've spent the entire time expecting a letter demanding I go through a WCA, as they haven't done one yet. My PIP award's under review at the moment (form returned...
  14. Kitty

    Undark: For Volunteers Harmed in Clinical Trials, an Imperfect Safety Net

    And does it cover something that wrecks your life, but doesn't show up on a test? Does it cover something that doctors claim can't cause ill-effects, like – I dunno – vaginal mesh?
  15. Kitty

    A synthetic data generation system for myalgic encephalomyelitis/chronic fatigue syndrome questionnaires 2023,Lacasa et al

    Who's going to tell them that the reason ME is difficult to diagnose is not actually that it's difficult to diagnose? :rolleyes:
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