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  1. Kitty

    ME/CFS progression in years and stages

    This will be my 46th year of mild to moderate ME, with a slow initial onset. I was definitely exposed to EBV the year I got ME, but I never developed symptoms. Two other people I was close to (though not related to) also developed ME, all within a few years of each other. I was undiagnosed...
  2. Kitty

    Compression Stockings Improve Cardiac Output and Cerebral Blood Flow during Tilt Testing in (ME/CFS)Patients: A Randomized Crossover Trial, 2021,Rowe

    Bloody hell! They're £13 on Amazon for a pair of Activa thigh-highs, which is the brand you get on prescription if you wear Class 1 or 2 stockings.
  3. Kitty

    An Association of Pathogens and Biofilms with Alzheimer’s Disease, 2021

    Isn't that what causes syphilis? I wouldn't imagine it's very common at all these days, unless they're on about a different type of infection.
  4. Kitty

    Please help me find new bedding in the UK

    I asked a friend about this today—she used to work in the garment industry, so whilst she's not an expert, she does know a bit about fabric. She wrote this for me, saying that there are several things that influence how cotton handles:- The fibre used Egyptian Nile cotton has one of the...
  5. Kitty

    Please help me find new bedding in the UK

    Have you ever tried jersey bedding, @Hummingbird? I haven't, I just saw it on sale when I recently replaced my duvet and decided to buy some pillowslips as well. I think it's made from fabric similar to t-shirting. I'd certainly second the comment about cotton sateen. I use Next's sateen sheets...
  6. Kitty

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    :rofl: These idiots have never met an ME patient, have they? I mean, not even looked on Twitter. If I had to document all the micro-breaks I took in 14 hours awake, it would take days. I've taken three writing this sentence.
  7. Kitty

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    Funny that they don't assess the risks and burdens associated with their 'therapies', isn't it? I do hope everyone writes that in red ink all over the bloody questionnaires. In addition, obviously, to enquiring whether all these so-called studies are actually the insurance company equivalent...
  8. Kitty

    The biology of coronavirus COVID-19 - including research and treatments

    My friend's daughter told her that she'd been so worried about getting infected at work in London that she'd done three LFTs the day before visiting someone vulnerable last week. Morning and afternoon both negative, evening one was positive. She doesn't know whether this is meaningful, but she...
  9. Kitty

    Covid-19 vaccination experiences

    Yes, me too. Though in their case, their primary course of immunisation was described as consisting of three doses rather than two, so the fourth jab is their booster. At least one of them has been told to expect their appointment fairly soon.
  10. Kitty

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    The whole thing looks complicated to me, too. The immune system clears the virus quite quickly in most healthy younger people, so the theory seems to rely on fragments of a particular protein being able to hang around for an extended period to set off, and then sustain, this kind of havoc...
  11. Kitty

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Nor the phenomenon where some people appear to recover well from acute Covid, but then develop hard-hitting chronic symptoms weeks or even months later. I've seen numerous reports of that over the last year or so.
  12. Kitty

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    Charity-speak for a specific type of income. It's the result of work by a specialist fundraising team, and usually comes from sources other than a charity's traditional income streams ("We're skint this year, who haven't we asked yet?"). Examples might be grants from private trusts and...
  13. Kitty

    Covid-19 vaccination experiences

    Noooo! What a pain in the bum. I had to wait six months and a week, but since they reduced it to three months, quite a few of my younger friends have managed to get topped up just in time for Christmas. Shame your husband couldn't get done, but hopefully you'll both manage to dodge the lurgy anyway.
  14. Kitty

    The Chrysalis Effect

    Health minister doesn't necessarily mean the secretary of state for health. It could just as well have been a brief conversation with some junior minister over coffee at some event or other. Had it been the secretary of state, they'd probably have mentioned it. The unnecessarily tautological...
  15. Kitty

    Relationship between pineal gland, sleep and melatonin in fibromyalgia women: a magnetic resonance imaging study, 2021, Leon-Llamas et al

    I read it as a correlation that doesn't reach statistical significance. But then again I haven't mastered long division yet, so I'm not exactly the go-to person on anything to do with maths... :rofl:
  16. Kitty

    The Chrysalis Effect

    Hopefully the NHS won't touch it with a 10-foot pole, since it sounds very unlikely to be any kind of a match with the NICE guidelines.
  17. Kitty

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    Especially as people habituate to many medications fairly quickly. They may still have some effect, but of course not all of them will reduce a person's cognitive capacity—some may improve it by reducing symptoms that would otherwise be distracting.
  18. Kitty

    News from Aotearoa/New Zealand and the Pacific Islands

    I do wish someone had researched this. If a significant percentage of people really are having adverse reactions, and a few (myself included) had unmistakably beneficial responses, doesn't that say something about the immune systems of people with ME?
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