Plenty of young people who've suffered harm through social media would tell you about it if you just asked them. And about things that might have helped when they were caught up in the worst of it. The RCP aren't ever going to be the experts here.
...and that collaboration includes recording properly how disabling the symptoms are. Patients' pain and suffering is quite bad enough, without being multiplied by not having enough medical evidence to get financial support when they find themselves completely unable to work.
Dunno, but can somebody tell me how to get a few hundred grand to test whether celery sticks dipped in mayonnaise or liquorice sticks dipped in rainbow kali work best for low back pain? It affects millions of people, and we need to find some solutions.
I get auditory hallucinations too. For instance, every time I run a tap, I hear and feel the vibrations from our old dial phone that used to shake the thin panel wall it was mounted on. (I haven't had a landline for more than 10 years! :laugh:)
If a noise has previously been annoying you, I...
Absolutely. People without any obvious energy deficit would never pay money to test it, so it's impossible to get an accurate picture of what the normal range might be.
The medical profession SO MUCH needs to start offering career advancement to doctors prepared to say 'I don't know', instead of those who don't know but make something up without any evidence!
When we know the final total, I was planning to post a brief message saying how wonderful it is that XXXX people have signed up in such a short time – without making any reference at all to the tiny number of complainers!
I agree – you can't win. And if the study were funded, I'd wager some of these folk wouldn't be able to resist participating in the end anyway, instead of just grumbling about the lack of research.
This is really important, but hopefully it can be got around by being clear that questions are based on levels of activity that would be considered normal. For instance, on most days of the week it's usual for healthy people to wash and dress, do some kind of work or activity, prepare or buy...
This is unlikely at present, as the genetics underlying mental illness are unclear at best. Also, illnesses such as depression are so common (at least one in four people will be affected at some point in their lives?) that it would be very hard to make a clear genetic link.
We'll hopefully...
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