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Same here—said on the news that the website (which refused me last week) was being changed from today, and I've been able to book for 21st. Only came up with two venues with wheelchair access and disabled parking that are close by, but as one of them's five minutes away, all good. Sometimes...

Thanks, Tom – it was easy to find the charity and vote, and it appears you can opt out of follow-up emails too. (Hopefully!)

That's all really interesting. I'd never read anything about it, and was clueless about the 'commitment', but had made assumptions about the acceptance bit: learning to accept the limitations of your illness and finding things you can enjoy without making your symptoms worse, instead of...

I'm not sure of this, but do you not ask the assessors for the report? The idea that that DWP couldn't provide it is laughable since they based the decision on it, but something seems to stick in my mind about asking the assessment company for the reports. I've only ever done three assessments...

I'm much more interested in this, since it seems at least to be a real phenomenon. We don't all have it, but it does seem to be a feature in some of us. There are a lot of potential explanations for it, but I'm not sure anyone's really pinned it down yet. The effects of it on patients aren't...

In strict terms the guideline shouldn't have any effect, as awards are supposed to be based on how an illness affects the claimant, not what their diagnosis is or what any guidelines about it say. I've heard reports of issues with assessors questioning whether people have or haven't taken part...

They're not used to people actually checking their homework, are they? Can't decide whether it's hilarious or just terrifying.

I take them because they reduce PEM and help me digest carbs, but I've no idea why. I once spent six or seven weeks getting though a tub of identical-looking but different supplements, which I'd picked up thinking they were BCAAs. I cursed the brand for selling fakes because they didn't work at...

Yes, I've had spontaneous recoveries that occurred pretty much overnight in the early part of my illness. The first was after seven years, and there have been two others subsequently, but nothing like them in the last 25. For me, it was simply a case of waking up knowing that something major...

No – as far as I know, it's all anecdotal and people's own experience. For instance, I'm probably one of the lucky ones in having had good remissions as well as the relapses, but no evidence of gradual deterioration over the 45 years up to now (other than natural ageing). Other ME long haulers...

I struggled with this too. I didn't have the complications of things like occupational pensions and ill-health retirements – in many jobs you know from the outset that if you live alone it'll be benefits and the end of paying a mortgage – but the main problem was the way ESA works. I tried...

Google gave me these: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8163173/ https://www.tandfonline.com/doi/full/10.1586/14787210.2015.1081056 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5482345/ Obviously not sure whether they're what you're looking for? I recommend Prof Vaughan Keeley as...

My brain is tired after a too-busy day yesterday, so I might not be capable of logic. But it struck me, reading your post, that the only reason for outcomes being worse at 135 weeks than at 52 (assuming that there are no confounding factors such as other illnesses or injuries in the meantime)...

We're going after 'em with their own tactics now, so your hypothetical tweet will read I keep wondering if I have been duped into being overcritical by patients. And then I see the garbage produced by the activists defending GET. I stop wondering. (Sorry! :laugh:)

:eek: Certainly if it's in solid form... Even one gram (equal to a normal adult dose of 2 x paracetamol/acetaminophen tablets) is a lot to swallow!!

Absolutely bloody hilarious that he tweeted reactions that morning, before he'd even bothered to read it...

I suspect quite a lot of them see the purpose of medical research as being to keep them employed for as long as possible and remunerated as handsomely as possible. The people doing the proper science are probably on less secure contracts, lower pay, and put in a lot more unpaid overtime because...

Quite possibly my favourite piece yet. Though they're all so good it's difficult to choose! Thank you.

I wasn't expecting much either, but it was their sheer lack of knowledge or insight about ME, despite years of experience of treating patients, that surprised me.

I have complete faith in his ability to come up with something even more unhinged/unethical/etc, so I'm not too worried about him.