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Thanks @Ravn, interesting to watch that. Yes, Fiona of ANZMES did really well, supported by Sarah Dalziel and Warren Tate. The argument seems pretty straightforward - ME/CFS is classed as a disability by the UN; and a previous submission to an NZ Select Committee on Health had resulted in a...

How long does "immediate need" work as an excuse for not producing robust evidence? A year? two years? five years? Some of the results they report of 'before' and 'after' do look interesting. But the paper is inconsistent in explaining that these 27 patients were selected specifically...

There are apps, you put your finger over the camera. I think they work by measuring the change in colour of your finger due to the oxygenation of the blood. The security issue is something that would need to be checked out, although I don't know that the app would necessarily know who you are...

So, a relatively low level? Lactate testing for sports applications That quote above suggests that lactate levels in ME/CFS might be the result of a mix of factors. People who are sedentary, so physically untrained, might have a low lactate threshold, and so blood levels of lactate might...

There's a 20 min podcast link at the end of the Aljazerra article. The attacks started in an extremely conservative religious area where some people do believe that girls should not be educated; girls' schools have been targeted; teachers and support staff, as well as girls, have been affected...

This is from an Aljazeera report in March 2023:

Have you tried a phone app for heart rate measuring, just while you work out if you want to buy a dedicated monitor?

Every so often I get an email to fill out an update, there's been maybe 8 or 9 updates. So, the information is going in. I'm not sure how much is coming out, but I guess that takes a bit of time.

Yes. I'd like to see a bit more about data security. The link for Privacy Policy goes to Yuzu labs. Yuzu seems to be a small San Francisco based company - perhaps only 2 employees? They run Study Pages and promise to keep data secure, but their customer is, in this case, OMF. Yuzu says: So...

The Solve You and ME Registry also accepts people in Australia.

Putrino is a staunch advocate for people with Long Covid. But he talks about "settled science" while listing a whole lot of findings on the pathology of Long Covid that are far from settled. It's a problem we have discussed often here - holding up preliminary findings of biological pathology to...

I agree. The more you look, the more there are many reports, not at all flaky, of latent infections that cause problems some time down the track. It may not be the answer to ME/CFS, although it could well be. But certainly medicine should be giving these a lot more attention. And, I also...

Dr Nath was asked about the criteria used in the intramural study, the inference being that the MEICC criteria should have been used, and that there is too much focus on the one symptom of PEM. Nath replied that they applied several different criteria and that they were as sure as they could be...

Dr Avik Roy and Dr Gunnar Gottschalk NINDS has just issued a research award for their work on ATG13 [so perhaps that tells us something about what the intramural study found?] they collaborate with Dan Peterson at Incline Village and are based at the University of Wisconsin. The lab there at...

I did make the webinar. 204 attendees, it will be recorded. Some notes: Koroshetz had a conflict and couldn't make the call. Vicky Whittemore: talking about the trans ME/CFS working group. Making a Roadmap, to assess what we know and don't know. Considerable efforts have been made to include...

Another reminder for the call. It's on at 4 am where I am, so I probably won't make it, but would love to hear the news. Here's the link for the recent Avik Roy and Gunnar Gottschalk paper, in case you want to refresh your memory prior to the call. Elevated ATG13 in serum of pwME stimulates...

High levels of pro-inflammatory SARS-CoV-2-specific biomarkers revealed by in vitro whole blood cytokine release assay (CRA)... 2023 Gomes et al This other small study for example found that people who had had Covid, including those with persisting symptoms, had higher IL-8 levels than healthy...

Ok, just to make this thread completely confusing: It turns out that there's a 2019 paper by Sweetman that mention G3BP2 (note the 2, not 1) Changes in the transcriptome of circulating immune cells of a New Zealand cohort with myalgic encephalomyelitis/chronic fatigue syndrome, 2019, Sweetman et...

I made this thread mostly because I thought the protein that seemed to be closely tied to viral persistence was the same as the protein that was found to be significantly reduced in ME/CFS immune cells in the Sweetman paper. But they aren't the same proteins. RAS GTPase-activating protein 1 is...

Reading the discussion in the paper linked to in the first post of this thread, it sounds as though different viruses employ different strategies in relation to G3BP1 and stress granules. Combine that with different host genetics and environment, and that could explain the seemingly different...