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I'm hungry most of the time. I have no idea why.

Fantastic letter.

I'm pretty sure that the illness had already been present for a while when I first noticed the "onset" event. I'm curious what the NIH intramural study will find. They have very strict entry criteria requiring a documented infection. That means their findings might not extend to patients where...

The BPS stuff sometimes comes across as a system that is primarily concerned with acting as moral police when in reality medicine has nothing to do with policing people to be good diligent citizens. The explanations they give for illness tend to involve moral failure, and the solutions they...

Q fever fatigue syndrome appears to be an instance of a postviral syndrome that wasn't lumped in with ME/CFS and this doesn't appear to have helped them make any scientific progress.

She appears to believe that ME sufferers believe in a postviral disease, while in her eyes long covid is viral and not postviral. Also, the reason there has been lumping in ME is not for the lack of trying to split, but due to an inability to do so in a meaningful way.

So just like in ME/CFS.

No, I think these people are lying to themselves or having some transient placebo responses, which by the way are entirely consistent with a purely physical illness. A person can also experience genuine improvement of the illness for reasons that are not clear, but attribute it to their favorite...

I wouldn't consider it a strawman argument. We're being asked to believe in a psychological cause of illness for political reasons and there's simply no good reason to believe in this idea. Since there is no magical mind-stuff that is not physical that makes diseases happen, and nobody...

Sudden severe chronic illness, disability is a shock. In response, a person may cling to unrealistic hopes. I know I did.

Summary: A new theory of memory visualizes the brain as an organic super-computer that runs complex binary code with neurons acting like mechanical computers. The theory is based on the discovery of the protein molecule, talin, which contains switch-like domains that change shape in response to...

The lowest GRADE certainty rating is "very low", described as "The true effect is probably markedly different from the estimated effect". Does that really accurately describe the worst possible scenario? It's as if only positive results are possible with this system, a bit like a questionnaire...

The test to determine whether some behaviour or statement about ME/CFS is okay or not is to replace ME/CFS with some respected illness. I find that this helps put things into perspective and opens one's eyes to how normalized it is to treat ME/CFS with disrespect. You might say: but maybe some...

This is similar to how homeopathy is often delivered. Homeopaths believe that they can figure out the right homeopathic remedy by learning a lot of about the patient. They are an attentive listener who will take time for the patient. This is probably an important reason why homeopathy has...

ME/CFS is not motor neurone disease but that doesn't make it acceptable to treat it like it's something patients inflict on themselves. Or something that you can wish or think yourself out of. Or any similar things. There is a big a problem with ME/CFS not being treated like other illnesses...

I suspect one of the main objectives of the BPS propaganda is to demoralize patients aware of the bad science so that they lose the will to fight back.

Would more nitric oxide help?

I see it different. Someone claiming that NICE changed the guidelines in response to pressure (and not evidence) is making an attack on both NICE and patients.

Yes, this is why we should get NICE to release a statement that they haven't been pressured by patients but found patient involvement valuable and so on.

The power of the BPS narrative is how it flatters one's ego. You get to tell sick people that they're preventing their own with recovery through negativity and this is, according to the BPS narrative, how you help the patients. Behaviour that would get you labelled as emotionally abusive in...