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It would be interesting to know what they consider "convincing evidence that CFS is a functional somatic syndrome".

I vaguely remember that this is not planned and believe this is because the technology used is different from that required for diagnosing a genetic disorder. Maybe also because it would be a lot of extra work.

Share some links please.

After the report criticized the BPS approach harshly, it seems unlikely that the panel will contain any BPS oriented people.

The report is good. My thanks to the people involved in making this happen.

More than a complaint it would be useful to show how Fox is spreading misinformation when the SMC proclaims itself to be a solution to misinformation.

Funny coincidence: I just got a call from the rare diseases clinic for a muscle biopsy on 7 June. If the problem is metabolic there is a chance it can be discovered that way.

I don't normally consume sugar or sweet drinks. The positive effect of eating is most noticable during or right after exertion and the food is carbs. This is usually not a large meal. I've had symptoms triggered by exertion nearly disappear within minutes. It seems like an important hint of...

I don't normally buy and drink fruit juice either. Some family friends had brought it a few days earlier. I also often feel worse after eating large amounts, so I tend to eat smaller amounts more frequently. I do wonder if I have a neurometabolic disorder instead of ME/CFS.

I did some light manual work and became increasingly symptomatic. The symptoms that I remember included fatigue, malaise difficulty applying sufficient strength to the electric screwdriver to fully insert screws, and after repeatedly having to bend down, having increasing difficulty tolerating...

Perhaps some context is useful: a while ago I was putting together a Hollywood swing. During one of these construction sessions I started becoming exhausted and weak in my limbs and dizzy. 5 minutes after drinking some fruit juice I was able to resume working and finish that day's session...

What might happen if there is autonomic dysfunction? Not enough stimulation of energy production at the time it's needed, and maybe excessive stimulation when it's inappropriate? Like, not enough during activities, and too much during rest. Is the noradrenaline release associated with POTS...

If there was a general dysfunction of the autonomic nervous system, what effects would that have on energy production? I know that insulin release is (partially?) dependent on signals from the autonomic nervous system. Autonomic dysfunction of the POTS type can be associated with increased...

Re. the reference to fascism. In Nazi Germany and Austria, some of the first victims of the regime were those disabled by chronic illness. That group likely included many survivors of the 1918 pandemic. They even gassed a distant member of my family because he had no fixed employment.

Yes it's also serious journalistic failure to get facts so wrong.

Let them know that was Fox is saying is inaccurate. The "harassment" turned out to be freedom of information requests, and the death threats seem very likely grossly exaggerated or entirely made up (I suspect most of them are made up), and even if they happened, they are being used to attack...

The conflict as being "scientists versus patients" is a false construction. There was plenty of criticism of PACE from scientists. My impression is that the people involved in medical research outside the UK and with an interest in ME/CFS were mostly on the side of the patients. If anything...

Is there any reason that long covid couldn't be explained by a infection of intestinal bacteria, leading to continued exposure to spike protein, perhaps for many more months after the apparent end of the infection? And then eventually to some sort of dysregulation of the immune system that...

I'm sure the masses of people who falsely believe they are disabled by an illness will very soon see the light and recognize they're disabled only by their own negative attitude.