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I don't think they are. I had in mind exercise physiology, cytokine and cortisol studies and trials of supplements and medical devices when I thought of the items I suggested. Lack of blinding and lack of objective outcomes are issues with a whole range of studies.

We've discussed post-chikungunya symptoms before in this thread: Rheumatism and chronic fatigue, the two facets of post-chikungunya disease: the TELECHIK cohort study on Reunion island, 2018, Gérardin et al

Thanks @Michiel Tack, this is very helpful. I'd like to see us draft something on the forum. I'd ideally like to see ME/CFS advocacy groups signing up to some international agreement, where they undertake not to support research and researchers not meeting the guidelines. Some more points off...

I've sometimes wondered if there is anything to hypnosis other than suggestion on steroids. The evidence I've seen does not look very compelling in terms of supporting the idea that it is any more than that. And that video isn't at all convincing. Does anyone have any insights?

I can't access the paper, but this type of case report concerns me a lot. In the abstract, there is no consideration of the possibility that the girl had some physical cause of her lower limb weakness and just recovered naturally over time. And so, with the certain view that she just needs to...

Is this meant to convince us that hypnosis is a credible treatment? I mean Hippocrates, considered by many to be the father of modern medicine, had some theories that seem a little, well, wrong, now. Well, to most of us, anyway.

Patient selection: over 18 years, and not living in a dementia home; able to respond to a mailed questionnaire. It looks like the selection was something like all suitable patients during a period in a district (1001 people) except for the inclusion of 26 patients previously under the care of...

So, done by someone working for a Health Insurer. And the conclusions are that Covid-19 does not lead to frequent or severe issues in most cases. Fear and anxiety and handling stress are mentioned. Never mind that 49% of people reported these issues at 3 months: Because apparently

I agree @Trish. We all know that CS works hard for people with ME/CFS. But he's one man, and his perspective is shaped by his background, including his training as a doctor and his personal connections. The whole point of a Board and a staff is that there are people who can bring different...

There's some useful content on the Charite in Berlin here: News from Germany

We've split off some posts about ME/CFS doctors in Germany in a treatment thread, and created this new thread: ME/CFS Doctors in Germany You can share experiences and thoughts about specialist ME/CFS doctors in Germany that might help others there.

This study and the related one of men is discussed here: Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

https://www.mdpi.com/2227-9032/9/6/682 C. (Linda) M. C. van Campen Frans C. Visser Abstract Introduction: Multiple studies have shown that peak oxygen consumption is reduced in the majority of ME/CFS patients, using the golden standard for measuring exercise intolerance: cardiopulmonary...

:rofl: Years of medical education...

Off-topic, and no doubt it's been thought of before, but BPS works very well as an acronym for the 'Brainwashing Patients Society'.

Thanks for giving us that insight, Ryan. Surely the MEA can see that doctors who treat their patients like that should never be appointed as the patron of a patient advocacy charity?

An old poster, but worth having in the forum as it establishes Crawley's link with putting 'Pervasive Refusal Syndrome' labels on children, despite them reporting 'post-exertional fatigue'.

https://www.researchgate.net/publication/273874213_G160P_Case_series_of_Pervasive_Refusal_Syndrome_presenting_with_Chronic_Fatigue_Syndrome_avoiding_the_pitfall_of_a_wrong_diagnosis N. Herberholz, Simon Collin, Alison Mccowat, Esther Crawley Abstract Aim Children with Pervasive Refusal Syndrome...