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There seem to be only 5 sequelae recorded that map to main ME/CFS symptoms - fatigue, muscle weakness, joint pain, memory problems and sleep disorder. Of these only sleep disorder does not show marked age related significance - Table 3. And interestingly all five present disproportionately as a...

The usual trick of putting a multi year figure in the headline, which will be endlessly repeated year on year making it appear that the investment is 5 times higher than it is. £75 million a year appears to be an increase on this area of research but it needs picking through the accounts to see...

Not sure if these are helpful or not: 1. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8292678/ 2. https://onlinelibrary.wiley.com/doi/10.1111/dmcn.13349 3. https://onlinelibrary.wiley.com/doi/10.1111/dmcn.13159 4. https://sci-hub.se/10.1007/s10072-019-03930-3

This reads like a totally different paper - but seems to use the same data: https://academic.oup.com/occmed/article-pdf/69/6/453/30092523/kqz108.pdf

It is what in Google world is called the "Knowledge Panel" here's the Googleverse explanation: https://support.google.com/knowledgepanel/answer/9163198 . At the bottom of the panel, outside the frame on the bottom right, is a feedback link. If any one is motivated maybe they could post a link to...

This questionnaire isn't about gaining data, it's a test-retest[1]procedure for testing the statistical validity of the questions, which in this case are to be used in a formalised questionnaire to help (?) people suffering from PEM. That's why it is in three parts - the middle bit is to provide...

I though it was about relative performance across three dimensions - before ill, ill but on a good day, and today - I didn't read anywhere that it asked if you were experiencing PEM today.

I'd like to see a statement of how that hypothesis meets a test of falsifiability.

Maybe, but as the sole Green MP she will have multiple Westminster demands on her time and the number of APPGs is huge, she seems to be or has been on several APPGs that cover Eco issues. As a general measure, that an MP isn't on a particular APPG probably doesn't say much about their position...

Autism-related dietary preferences mediate autism-gut microbiome associations. Chloe X. Yap, Anjali K. Henders, Gail A. Alvares, Andrew J.O. Whitehouse, Naomi R. Wray, Jacob Gratten Summary There is increasing interest in the potential contribution of the gut microbiome to autism spectrum...

It's a long time since I was there and personnel have no doubt have changed - my estimation from getting on for two decades ago was: decent, kindly professionals doing the best they could with inadequate knowledge. I certainly don't recognise a characterisation of some kind of torture farm.

Most people working in the NHS have not signed up to, indeed very few including those working with ME/CFS patients, even know about the treatment philosophies of the BPS zealots. They may have misperceptions about ME/CFS but very few would actively seek to deny patients help and support that is...

Neocortex saves energy by reducing coding precision during food scarcity Zahid Padamsey, Danai Katsanevaki, Nathalie Dupuy, Nathalie L Rochefort Abstract Information processing is energetically expensive. In the mammalian brain, it is unclear how information coding and energy use are regulated...

Buzzword indeed - https://www.england.nhs.uk/personalisedcare/supported-self-management/ The wikipedia page on disease management is quite good in defining the broad territory https://en.wikipedia.org/wiki/Disease_management_(health)

From another thread:

I've had a brief look at it. I think it's the sort of thing that Forward ME could focus on. There could be a precedent here: https://www.hqip.org.uk/a-z-of-nca/#.YYlz6LrLfV8 It could be argued that following a suitable period of time for the new Guideline to bed in, say 6- 9 months and...

Do you mean this ? https://www.england.nhs.uk/clinaudit/ Sorry I know nothing about it.

Non committal bureaucrat language, at this stage I'm not sure it means anything other than if there are to be services for ME/CFS then from the funding perspective they're going to be rolled into the unhappily named Adferiad programme - English translation is Recovery, which of course sets up an...

Dated 08/11/2021 Reply to an email addressed to the Health Minister, Welsh Government, asking what action she will take following publication of the new Guideline.

This portal should work but I'm sure there's an address on the claims docs/the online claim pages. https://secure.dwp.gov.uk/personal-information-request/name