Search results

He's a pretty hyperactive character. Part of his life is spent as a comedian who comments on health, he does the Edinburgh fringe most years, and who uses comedy to promote good health and health education, he was the presenter of Trust Me I'm a Doctor, he also writes quite a lot, a number of...

This really is a time for co-ordinated action, at the very least many hundreds of letters need to be written, and ideally those letters need to reflect 'local stakeholding' (yes I know "yuk", but we need think in terms of bureaucratic audience we have to address). Even in NI, Scotland and Wales...

My thoughts are that the whole process of the MRI -preparing for the day, getting to the facility, answering all the protocol questions, being in the machine, would place far higher physical and cognitive demand on the ME subjects and that any difference in perfusion would involve at least some...

IS FND not undergoing a reappraisal ? This page from a respected institution https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Functional-Neurologic-Disorder is specific in saying FND is an organic condition, acknowledges that the name came from Freud but explains it is...

Just to reiterate the points that: (1) Scotland is outside the NICE Guideline but what goes on in Scotland is a) important to Scots PwME ! and b) may influence what happens elsewhere in the UK. (2) that there are currently no clinics in NI. (3) that the 3 clinics that did operate in Wales...

And I hadn't even thought about that. My thinking was: if GPs have no specialist service to refer a patient for diagnosis, then the GP has to have the knowledge, means and funds to ensure all the relevant exclusionary tests are done to ensure the patient doesn't have something that is treatable...

I meant to include this in the post above: https://transformationunitgm.nhs.uk/services/nhs-change-management-strategic-transformation-and-strategic-planning-implementation/

Essential that this is done through co-operation between the patient groups, and good to hear that is in hand. Commissioning on the basis of the new Guideline concerns not just improving the existing clinics but also the funding and provision of services where none are currently provided...

All the usual caveats about needing expert legal advice on a case by case basis apply ! But - yes the Guideline does not trump clinical freedom. However if harm is demonstrable (which of course it may not be to a legal standard) then the Guideline would serve as a sort of negative indicator of...

Some previous comments made here: https://www.s4me.info/threads/how-can-we-stop-research-funding-being-wasted-on-more-low-quality-studies.22862/page-2#post-383652 Professional jealousies have been known to involve attempting to block an 'enemies' grant applications across academia. It's a two...

There was always going to be a limit beyond which the SMC could continue its exclusion of other voices - there are number of things that have contributed to the limit being reached, of course the Guideline itself has moved things along but the institutions that back the SMC aren't going to be...

Comes into the class of 'not even wrong'.

But 'you' didn't think it collegiate to ascertain what the other parties to those discussions think before staking your particular claim ?

Which raises the question "if the NHS isn't using GET, then what is the evidence that the use of this 'other' treatment is of any benefit ? Edit to restore quotes

Study involving 2 of the speakers: https://www.s4me.info/threads/fibromyalgia-and-me-cfs-an-interoceptive-predictive-coding-model-of-pain-and-fatigue-expression-2021-sharp-et-al.22941/

There's a balance to be made between maintaining momentum and analysing what has passed so as to inform progress; I'd always err on the side of momentum. Unless one is very, very good at presenting balanced histories, dredging around in past wrongs frequently comes out as no more edifying than...

Merged thread What's the opposite of serendipity ? Conference today (Guideline publication day !) organised by the BPS friendly Sussex & Kent ME/CFS Society: Research and Management conference – October Sussex University researchers and specialist doctors are to gather at Malmaison Hotel...

I don't think this has been posted yet: Technology Networks: Neuroscience news - https://www.technologynetworks.com/neuroscience/news/health-body-scraps-graded-exercise-therapy-recommendation-for-mecfs-355265 The UK National Institute for Health and Care Excellence (NICE) has released...

A clinician can't just switch a patient's diagnosis on whim - it would have to take place within some sort of process involving the patient and within which informed consent would be foundational. Changing diagnosis would implicitly involve a change in the treatment and care plan that the...

Homeopathy is recognised as a real medical discipline in India - which is where the authors are based. It's just a desk review so no real costs in putting this study together but Indian research funds go into this area. https://www.nhp.gov.in/homeopathy_mty I'm afraid the homeopathy belief...