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  1. Trish

    Exeter firm excited over long Covid test success [BBC News]

    I think what they are trying to do is advertise their business and make pots of money by selling tests.
  2. Trish

    [Poll] How does exertion affect sleep? (Read instructions in first post)

    Tou may need to shorten the question to fit it into the poll. Maybe something like Which option best describes your sleep at the beginning of a crash?
  3. Trish

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    No. She reported they were preparing a draft to suggest to the editor. She probably wasn't allowed to reveal what it said. Clearly the editor rejected their draft.
  4. Trish

    [Poll] How does exertion affect sleep? (Read instructions in first post)

    Your question says 'that night'. Do you mean the first night after the excess exertion and before or at the start of the crash? My sleep changes over the nights for as long as the crash lasts. I think I remember correctly that tired but wired often happens on that first night and is the first...
  5. Trish

    [Poll] How does exertion affect sleep? (Read instructions in first post)

    I think it's worth adding tired but wired as an option. It's not just about not being able to sleep it's mental and physical restlessness a bit like having too much caffeine. Also I think it would be worth asking if it happens specifically at the beginning if a crash.
  6. Trish

    Exeter firm excited over long Covid test success [BBC News]

    Prof Shaw is a professor of chemistry. https://experts.exeter.ac.uk/1921-andrew-shaw
  7. Trish

    Donating and fundraising by people with ME/CFS - discussion thread

    When I was an MEA member and received the magazine I always thought most of it was page filler rubbish, and ads for dubious therapists. I soon only skimmed the medical updates from Charles Shepherd, then it went in the recycling. I could just as easily have read the medical stuff and odd bits of...
  8. Trish

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Moderator note Discussion of the latest developments resulting from Cochrane's decision to cancel the update and republish the old review as a new review has spread over several threads. Mods have decided to bring them together in a new thread. Some posts will be moved there from this thread...
  9. Trish

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Moderator note Discussion of the latest developments resulting from Cochrane's decision to cancel the update and republish the old review as a new review has spread over several threads. Mods have decided to bring them together in a new thread. Some posts have been moved there from this thread...
  10. Trish

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Moderator note Discussion of the latest developments resulting from Cochrane's decision to cancel the update and republish the old review as a new review has spread over several threads. Mods have decided to bring them together in a new thread. Some posts have been moved there from this thread...
  11. Trish

    Functional neurological disorder in multiple sclerosis: A prospective study, 2025, Cuoco et al.

    I feel that we are becoming an increasingly isolated island of sanity in a world gone mad. We are under seige from all directions.
  12. Trish

    Prevalence of Long COVID-19 among Home-treated COVID-19 Patients in Baghdad, Iraq 2023, 2025, Majid et al

    I really don't think it's helpful calling it Long Covid after only 4 weeks. I thought most studies used 12 weeks.
  13. Trish

    What could it mean biologically that both physical and cognitive exertion can cause PEM?

    Over exertion causing insomnia is well know to pwME as 'tired but wired'. For me it often a sign PEM is about to strike.
  14. Trish

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    It's a pretty good and accurate article. I'm not surprised the Cochrane comment about their withdrawal policy omits to mention that they can withdraw reviews on the ground of harm. Good to see our petition quoted.
  15. Trish

    Provocation of Brachial Plexus and Systemic Symptoms During the Elevated Arm Stress Test in ME/CFS or Idiopathic Chronic Fatigue, 2024, Edwards

    We have seen on forum discussions that some pwME find arms above the head activities unexpectedly exhausting. I notice it particularly when putting clothes on and off that have to go over the head. Replacing an overhead light bulb is really problematic.
  16. Trish

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    The article does say there have been pauses to some NIH activities when some other administrations came in, but this is much more drastic.
  17. Trish

    Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders, 2025, Ilene S Rugoy et al

    As I read this abstract I was anticipating a report on follow up with the patients after surgery. Nothing. Surely with that number of patients treated with such major surgery they should include a careful study and report of outcomes.
  18. Trish

    Behaviour Assessment System for Children, BASC - a discussion

    Trouble is, they are descriptive categories not measurements. And the order they are placed in is arbitrary. So the pattern seen by joining the dots is also arbitrary. Change the order the descriptive categories are placed in and what looked like an elephant turns into a snake, metaphorically...
  19. Trish

    Improving GPs’ approaches to functional somatic syndromes: a pilot training program with a focus on compassion & communication, 2025, Ariane

    I can understand that clinicians who by the nature of the job have to deal with people suffering and in distress every day sometimes themselves need support, and need to be aware of and take care of their own mental health. I can see that learning to practice self compassion might appeal to some...
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