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Link to Substack post

Could you explain? I think if there was evidence (or negative evidence) about persistence of specifically the virus that preceded ME, it would be pretty meaningful in showing how it relates to that initial infection.

That's a bit surprising to me. I just found this: The open window of susceptibility to infection after acute exercise in healthy young male elite athletes, Kakanis et al, 2010 So even if it's not necessarily "taking energy away", it looks like there are lots of significant changes to the...

Doesn't viral persistence offer a pretty good explanation for delayed PEM? Exertion and repair from that exertion take energy away from the immune system [Edit: "energy stealing" doesn't have to be the reason, could be some other unknown mechanism where exertion allows a virus to proliferate...

I think there should also be a section on how ME/CFS relates to conditions like Long COVID and GWI.

Thread about the referenced study of CSF drainage improving symptoms.

Lumbar puncture, chronic fatigue syndrome and idiopathic intracranial hypertension: a cross-sectional study Authors: Nicholas Higgins, John Pickard, Andrew Lever Abstract Objective Unsuspected idiopathic intracranial hypertension (IIH) is found in a significant minority of patients attending...

Merged thread COVID-19 and chronic fatigue syndrome: Is the worst yet to come? Author: Peter Wostyn I barely understand what he's talking about, and the paper has much more detail on his mechanism theory than these quotes - I wasn't really sure what the important parts to copy were.

COVID-19 and chronic fatigue syndrome: Is the worst yet to come? Peter Wostyn https://www.sciencedirect.com/science/article/pii/S0306987720333600?dgcid=rss_sd_all From the same author...

All suggested changes made, thanks! I added this for those bloggers: I don't know if it's worth adding more organizations to this, like SolveME and OMF, or if it'll make it unnecessarily long: I think it's important that everything in this is cited, so curious (and responsible)...

Hmm, just checked my last lab results and my iron serum was at 36ug/dL about a year ago. 11% iron saturation. Both below Labcorp's range. Though, 7 years ago it was at 95, and I felt awful then too.

Fluoroquinolone-induced serious, persistent, multisymptom adverse effects, Golomb et al, 2015 (Fluoroquinolones are a class of antibiotics. One example is ciprofloxacin.) This study isn't about ME/CFS, it's just talking about a variety of symptoms from taking these drugs, but the delayed...

Maybe it'd be good to reach out to some of the journalists doing it right, like Ed Yong, to get their input on how to best structure this for other journalists. I don't think I have the energy to do this, but just throwing it out there.

Yeah, reminded me of what we were talking about with eye tracking: https://www.s4me.info/threads/idea-for-machine-learning-model-to-track-fatigue-accurately.38583/#post-536370 I might try to see if I can find the exact technique they used to see if it can be done without special equipment.

Not sure who to contact other than Jaime, so I sent her a tweet.

MEpedia seems to be barely working right now. It was going extremely slow a few minutes ago, like 5 minutes to load a page, and now it's saying "technical difficulties" for me.

Splitting this off into its own thread to not derail a couple other threads. @Yann04 had the idea to track page views on individual pages of MEpedia to see what is most popular, and thus should probably have priority for being worked on. So I made a script to scrape the lifetime views of each...

I mean, it seems pretty significant. Even if it's not actually CFS, which it probably isn't, it looks like this plant might be useful for something. Although, I barely understand any of the statistics on the second chart.