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https://www.dovepress.com/recent-advancements-on-long-covid-in-china-a-narrative-review-peer-reviewed-fulltext-article-IJGM Abstract: The COVID-19 pandemic is a huge public health crisis in the 21st century. In addition to the acute symptoms, a considerable proportion of patients worldwide have...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10281439/ Long COVID hinders people from normal life and work, posing significant medical and economic challenges. Nevertheless, comprehensive studies assessing its impact on large populations in Asia are still lacking. We tracked over 20,000...

We've seen these papers with a cast of dozens before. It's as if they are doing science by a popularity vote. 'We must be right because we have 51 people who are prepared to put their name to this'. What's a good name for that sort of "science"? Before anyone suggests, that's a bit 'pot...

That is a nice article @oldtimer. But, I quibble over this: I think I've mentioned before how, when visiting some people in a village in a very remote part of the highlands of Mindanao, I met a young man who had, completely uninstructed in formal science (in fact he'd never been to school)...

Thanks @obeat. I'll send you a message re where we are at with those.

Kia ora to M.E. Awareness in New Zealand for signing the letter and supporting the petition. Thank you. @Robert 1973, thank you very much for offering to help. :) Speaking generally, we haven't yet contacted all the organisations and people we can think of. We are waiting for replies or...

From the article:

Muchas gracias CONFESQ in Spain for your support! That brings the number of ME/CFS organisations supporting the open letter to 29. We would love to get more, so, if you have an association with an ME/CFS or Long Covid organisation, it would be terrific if you could inform them about the open...

That's fantastic @rvallee, very encouraging to hear this. I clicked through to the surveys, it looks as though only people in Quebec can respond as it asks for your region in Quebec. I hope that INESSS receives some praise.

Healthcare system barriers impacting the care of Canadians with myalgic encephalomyelitis: a scoping review 2023,Hussein et al

Tack! RME Kronoberg Blekinge in Sweden for your support, it is much appreciated.

@CRG, do you have any contact with the people involved, or any idea about the cost of applying this technology to large health data sources?

Information on the Symbol Digit Modalities Test: "Scoring involves summing the number of correct substitutions within the 90 second interval (max = 110)." There's a paywall, so I can't be sure about the unit of measure. But a higher score on the SDMT indicates higher processing speed. The...

We have a thread on the WE&ME Foundation here: Austria: WE&ME Foundation (formerly TEMPI-Stiftung, TEMPI-Foundation)

It's been similar with my son, with a patchwork of rest, home learning, and part-time school from age 13. Some years he managed full course loads, but never full-time at school, and approaches were constantly changing with opportunities and health. It became much easier for him to have a full...

Copying a comment I made back in 2017 on the Smile Trial over on Phoenix Rising - noting the missing school attendance data at 12 months, and the lack of clarity over how home tuition was quantified.

Ah, thanks. I did think that funding might be a significant factor in the decision-making. I guess things often cost more than expected, and that's certainly the case in the current economy.

There's been a lot of great work there @RoseE.

These arguments might make sense if we could have a lot of faith in the diagnoses of CFS or ME/CFS made by doctors. But, we can't. The key thing in trying to ensure as homogenous sample as possible is the screening survey that is part of DecodeME. Therefore, I don't think that people with a...

Just keeping track of who is doing these prejudiced studies - Harvard Medical School in this instance, with one person from Oslo University Hospital.