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  1. Hutan

    'I'm still here, I'm alive and breathing': The experience of Black Americans with long COVID 2023 Bergmans et al

    I'm not sure I'm following. These authors actually said 'address social risk factors like food security'. They included quotes where the participants talked about living in food deserts, about how hard it was to get good food due to the combination of the limited services in their...
  2. Hutan

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Some data out for the NIH ME/CFS study too - discussed here: USA: National Institutes of Health (NIH) intramural ME/CFS study
  3. Hutan

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Thank you Brian! A quick summary: HC = healthy controls ME = ME/CFS Figures in brackets are probably SD unless otherwise specified I've bolded the ones that look statistically interesting (hard to tell in some cases) Some interesting lack of differences e.g. in CRP, a marker of inflammation...
  4. Hutan

    ME/CFS Pathophysiology Investigated by Invasive Cardiopulmonary Exercise Testing and Autonomic Function Testing, 2023, Squires, ..Systrom et. al.

    The OMF webpage about this or related research by this team gives some information e.g.
  5. Hutan

    ME/CFS Pathophysiology Investigated by Invasive Cardiopulmonary Exercise Testing and Autonomic Function Testing, 2023, Squires, ..Systrom et. al.

    Conference abstract Introduction: Mechanisms underlying exercise and orthostatic intolerance in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been uncovered by invasive cardiopulmonary exercise testing (iCPET) and autonomic function testing (AFT), but the relationships between...
  6. Hutan

    Hello! Fitness tracker recommendations?

    This is exactly why I get a bit annoyed with people who try to suggest that people with ME/CFS need a huge amount of education by health professionals in pacing or energy management. In reality, it's mostly muddling through, tweaking things as necessary. Muddling through successfully...
  7. Hutan

    'I'm still here, I'm alive and breathing': The experience of Black Americans with long COVID 2023 Bergmans et al

    I've now read the paper and I found it interesting. Although the participants had a range of Long Covid symptoms, it was notable how many of them had symptoms that sound like ME/CFS, including an increased heart rate and trouble maintaining a stable temperature. The participants had tried all...
  8. Hutan

    'I'm still here, I'm alive and breathing': The experience of Black Americans with long COVID 2023 Bergmans et al

    Do you mean this finding, @rvallee? The finding that people who already face unfair discrimination in the medical system are likely to have an even harder time when they have a condition that primarily involves self-reported symptoms such as pain and fatigue and has no biomarker seems...
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