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Well, of course 'supposed to be reassuring' and 'actually being reassuring' are two quite different things. It's a bit like a doctor saying 'Good news! All the tests came back clear!' - some doctors probably genuinely think that is good news. Of course, it is not, as you still have no...

To be fair, not all neurologists. Contrast the attitude of those neurologists who find migraine patients emotionally draining and time consuming with the people in the team working to understand ALS, discussed in an article here.

JTJ

A comment on access. I didn't see any discussion about the particular challenges that people in rural areas or even outside main centres face in getting good care. Also I didn't see any discussion of the extra barriers that people who are not NZ European might face. People who are not NZ...

These neurologists... They seem very picky, don't they. They don't want anyone with 'functional' symptoms, which we are repeatedly told constitutes a substantial part of their clientele. And now it seems they don't want people with migraines because they are 'emotionally draining and...

Seems sensible. Perhaps she could be a useful ally. Perhaps we could let her know that the disease formerly known as chronic fatigue syndrome is also often mis-named.

From the article

I'm not seeing much of a turf war. We saw the UK Royal Colleges submitting comments in favour of the Lightning Process. And the Lightning Process is being trialled in the NHS. Here in NZ, we have an ongoing battle with the Royal College of GPs, who are promoting the Lightning Process at...

I think that excerpt is worth reading. The authors are grappling with the question of whether an FND is voluntary or not. These conditions exist, in the clinicians' minds I think, in some half-way house between pretending and a mental illness. I think that last description in the excerpt of an...

So, they are still acknowledging that they can't fix these patients. Perhaps that is useful to remember for advocacy. All that is to make a point that I think is valid - of course function is a result of structure at some level. So they are accusing people naming this supposed clinical category...

If people with FND are actually achieving something with their self-hypnosis, then, as far as I can see, they are doing better than hypnosis practitioners. e.g. this post refers to the Cochrane Review that found that hypnosis was of no use in getting people to stop smoking. Hypnosis and...

:rofl: Unless of course Rachel Whitfield's powerful brain instantly overcame the deconditioning? (In which case, GET seems rather superfluous.)

That's a pretty impressive turnout. Numbers like that surely build momentum.

That's wonderful @Yann04, great work.

Below, Rachel Whitfield in Long Covid Cures There are significant differences between that account and what she told the BBC reporter. She says above that she cycled for 20 minutes after the course. But, she tells the BBC reporter that she cycled 10 miles after the course. I don't believe...

I would like to think that too, and I have no doubt that the journalist did what she could. I've read the other comments here, but I'm still pretty sure that the piece will have people with Long Covid lining up to try LP, and/or their friends and family suggesting that they should do it. The...

I found that disappointing. There's a lot of nonsense and misinformation and not all of it is coming from Phil Parker. Una Oonagh the rower and Danny Altmann were good. I only hope that people will hear the bit about walking around an A3 bit of paper on the floor saying 'Stop!' and realise...

At around 9 minutes, about the Lightning Process: "In fact, it's currently being piloted by one NHS Health Centre in Scotland. The Centre for Integrative Care in Glasgow offers both conventional and alternative therapies, including homeopathy. NHS Greater Glasgow and Clyde said the Lightning...

Audio link - 38 minute listen

The committee sent a letter to Cochrane which you can find here. S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review The petition is in support of that letter. In subsequent letters to Cochrane, also on that linked thread, we have referred to the...