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RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis Evidence from March 2024 of the Royal NZ College of GPs and its information unit promoting the Lightning Process.

Given the massive marketing push for the Lightning Process and related treatments in NZ, targeted at Long Covid, has anyone come across reports of harm here?

I still have not had a response to my letter, despite multiple following ups including phoning the office a couple of times. I see that the Goodfellow Unit and specifically Bruce Arroll and Jenny Oliver ran a session on the Lightning Process in March 2024...

Thanks Evergreen From the manual:

I don't know the answer to your question, perhaps someone here will tell us. But, failing that, I think you might be surprised at the response you get if do contact a researcher. The few times I have contacted researchers, they have been helpful, and quick to reply. I think some members here...

The changes in the PSI seem to match with the changes in the Cerebral Blood Velocity. When supine, the blood velocity of the ME/CFS and control groups is the same. When tilted, the blood velocity of the controls drops by 8.7%; the blood velocity of the ME/CFS drops by a remarkable 22.5% When...

So, a clear improvement on cognitive performance in the ME/CFS after PE. (I don't think we have data for the cognitive performance in the controls after PE - there is just one line in the figures which I assume is cognitive performance without PE. - I don't know if there is an explanation)...

Yeah, I was struggling to make a clear story which is why I stopped. There might be one, not sure. Here's the benefit from the phenylephrine on the cognitive performance during tilt - % of numbers correct at each task difficulty. 'n=4' is the hardest task difficulty and is the one to focus...

I ran out of energy to finish writing the paper up. But, the two treatments they tried that didn't work are interesting. Just breathing CO2 didn't fix the problem.

1. Supine Cardiorespiratory Characteristics The finding of a higher resting heart rate in ME/CFS seems pretty solid. Of course, perhaps it's hard to know if that is just deconditioning, but I think the way the resting heart rate changes from day to day, and in line with symptoms suggests...

Aside from the small size of the study, there is this screening problem. So, it is looking as though the participants had to not only have ME/CFS but they had to test positive to orthostatic intolerance (with a 10 minute upright tilt) and hyperventilation/hypocapnea. We aren't told how many...

They say that they and others have shown that, in ME/CFS, being upright changes CO2, resulting is hypocapnia (not enough CO2) and hyperventilation. They suggest that the phenylepiphrine stops hyperventilation and increases CO2. Reference 23 is a 2014 paper by these same authors: Medow MS...

I wish abstract writers wouldn't use so many acronyms. It saves what, a line or two or words, at best while greatly reducing readability. The study looks worth reading though. Some questions I have include: The cohort is young and all had POTS. Is this more to do with POTS than ME/CFS...

:D Oh, but there is so much competition. So, not 'easily'.

Ugh. These people recommending exercise seem to think that activity doesn't count. I mean, if your capacity for activity is suddenly cut in half, you have to prioritise what you do. If you are a mother without much support, you are going to prioritise work and feeding your children, if you...

H2O2 isn't the chemical we buy in the supermarket in a bottle labelled 'Bleach'. But H2O2 bleaches. It is therefore 'a bleach'.

The German Multicenter Registry for ME/CFS MECFS-R, 2024, Hieber, Scheibenbogen, Behrends et al. What is says on the tin - first report from this ME/CFS registry

Justification for the registry. Of note is the relationship with clinics, so that there probably is reduced bias (or at least a different bias) in the people who are included in the registry, compared to situations where registry participation is more the result of participants hearing about...

acute disease at onset - 82/174 had a confirmed trigger of SARS-CoV-2 useful data

Interesting finding on the utility of the DSQ-PEM: