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I wouldn't go so far as to say 100 participants are needed, but yes, 10 for the treatment group is just hopeless. It's worse than that, because these people had been hospitalised with Covid-19. So, there are reasons other than PCS why they might be having cognitive dysfunction. If you only...

Blue is healthy controls, pink is post-covid syndrome at baseline (an average of 13.5 months after onset) and red is post-covid syndrome 6 months later (with some attrition). Reasons for the attrition from baseline to 6 months are given as Given people who are doing an 'inpatient...

Is that irony or do you think Putrino is right not to diagnose ME/CFS if people have persisting symptoms after Covid-19 and meet ME/CFS criteria @dave30th?

Jena, Germany Clear differences in reaction time and in many tests affected by reaction time.

It's still looking like a grab bag of all sorts of things though. For a researcher trying to find a causal mechanism to talk of 'Long Covid' as it is currently defined as a useful category makes no sense to me. Maybe the loss a sense of smell and the meeting of ME/CFS diagnostic criteria and...

I'm pretty much in agreement with you SNT, but are you sure the diagnostic criteria are the same? Last time I looked, the WHO criteria for Long Covid were ridiculously non-specific. Well, maybe not ridiculously non-specific when talking about the impact of Covid-19 on health systems. But...

That makes no sense. Criteria for interventional trials can include a time and/or suspected cause of onset, along with any other criteria they want to add. So, you can have a treatment arm of 'pre-Covid-19 onset ME/CFS'. And an arm of 'ME/CFS with onset attributable to Covid-19'. Long Covid...

Latest update from the team running the petition: News from Cochrane, or rather from the Independent Advisory Group NOV 12, 2023 — Silence has been broken after a hiatus of more than two years in the promised monthly updates from Hilda Bastian, leader of the Independent Advisory Group (IAG)...

The name of the South African organisation has been updated on the basis of this as reported on the /news from South Africa thread.

Thanks @Sly Saint. I'll update our organisation list.

This seems to be a very important point. Caroline, can you remind us what Cochrane's response to your complaint was?

It's really hard to know from here how hard any individual involved in that string of excuses has worked to try to make the information relevant to ME/CFS that is hosted by Cochrane better. It's possible that Hilda truly understands the terrible impact of the exercise therapy review and did...

I think the risk is that people will feel grateful to Cochrane for resisting the BPS attempt to shut the new review process down, and grateful about a promise that the editorial note on the old review will be strengthened. And that will distract from the fact that the old review is still...

On the question of the existing review: I don't think this is good enough. It seems that Cochrane doesn't think the existing review is bad enough to remove. On the question of the 'recovered person' on the IAG: This is very good news I think, and it's a relief to hear that Paul Garner did...

Thanks Lucibee. Here's a link to the review thread: Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian Probably best that general commentary about the update goes on that thread.

It may be a mistake, but, if so, it's a Freudian slip, in the selection criteria:

A purposeful sample. I guess that is true; I assume that in this case the purpose is to support beliefs that worry not only makes symptoms worse but is fundamentally causal, and that patients like and appreciate CBT. And, for goodness sake, what researcher sets out to recruit a sample for...

What a nightmare. You want to be screened properly for physical causes of your symptoms, but to do so you have to go to a clinic where there is a high chance you will get a Functional Somatic Disorder slapped on you if nothing obvious is found. The DISTRESS trial indeed.

I think that's an interesting idea. I think duration can be a factor, but muscle stretching that causes a lot of micro tears could definitely be a major cause of PEM. The pilates that I did to try to exercise my way back to health was utterly diabolical in producing PEM - and that involved...

When I needed a molar filled, I was offered a (white) porcelain option. The porcelain option is the most durable, lasting 20 years or more, fine for molars, and said to be non-toxic. Amalgam fillings are estimated to last 10-15 years. The white composite resin fillings are said to last only 5...