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Yep they sort of need to get, somehow, 200 people in who have the Hoover's sign and check longitudinally it isn't explained by something else without an FND diagnosis that means such investigations and follow-up and annotating as history doesn't happen. Of course that latter part of the...

Yes just because it is exercise - and has been done to the point of proving no more trials are needed, but was counter-intuitive in the first place unless your job happens to be in pushing it - doesn't make it any less wasteful than if they were spanking the money at 'eating peanut butter...

I know in marketing there is the need to get people to relate eg if giving a figure giving something ballpark to give a sense of what that magnitude means. I hate to say it but women feeling awful or collapsing is just a bigotry people are happy to write off and not try to imagine could happen...

is the cliffhanger approach normal for the abstract to what tantalise the reader into what happened next. It only seems to be something I see with FND papers so I guess that defines them as 'the next level in storytelling-focused 'researchers' vs the CFS stuff. Pay to read more and find out if...

Indeed it could begin with simple surveys that give pwme a list of different question types (leading, worded with 'not' the wrong way, using scales that are hard to understand what they are getting at) and a list of different circumstances/conditions e.g. when completely rested, have done a...

And yes, I do believe it should be straightforward to do studies showing exactly how responses can be influenced/changed by use of certain techniques for pwme. I've long thought that the CBT-related ones, and their various measures - before we even add in the conditions like people being...

Ok, maybe the term I'm looking for is 'a code of conduct' for methodology, but one strong enough that it goes to ethics committees as something serious highlighting that where methodologies fail to account for these vulnerabilities in design there will be questions regarding reliability and...

I know certain personality types of 'communication techniques' can basically outpace our conversation/thinking threshold and force/walk us to say things we don't agree with or mean. And hours afterwards even the most assertive of us would be stunned at how someone has managed to do that. But...

I want to bring this up from a methodology perspective which I think is fundamental to studies into ME/CFS past and present. Basically terming, rightly in the context of studies, pwme as 'vulnerable' under certain conditions and flagging that data taken under these without safety adjustments can...

There was a famous moment in the Uk during the BSE crisis when a politician fed his young daughter a burger on camera in front of the press. is that a similar thing?

Things like this all need to be forcibly consigned to a research assessment unit (ie subject under research funding terms) called ‘troping studies’ just so people are at least aware and funding given at least as much to decent psychologist and those who study the impact of such propaganda to...

That whole section to me is a view inside the mind of disability bigotry. shocking and I hope that some decent scientific psychologist, sociologists and studies of political rhetoric/populism start collecting this type of work as manifestos to study and what could be going on in the minds of...

Did he really suggest ACT? So the punchline of this manifesto is the bigotry solution of a conversion course to make the disabled accept the 'hassle' aka whatever harms, consequences and inappropriate behaviour is bundled under that, so those who can't behave properly can what pretend the fact...

Here we go again, I remember one from maybe a year ago using the same 'hassles and uplifts' - and I have big concerns that this is just reframing incidents that will cause PEM by throwing someone over their threshold, just like almost everything else about ME/CFS got reframed into something else...

the poor so and sos with this condition. It really isn't on anymore for dodgy sections of certain subjects to be allowed to continue with made-up personality terms just to slight people with certain conditions. These really are inventions as per psychology with things like 'perfectionism' not...

I'm a bit confused, as I can't access the full article (and also the conflicts of interest they note are at the end of it), what they think is 'managing FND' from this. I was initially anticipating given a scan of the measures that it would be seeing whether diagnosis and treatment improved...

I'm wondering whether looking into old generations of specialisms like Occupational Therapy and Occupational Health papers might be interesting context. When you get more and more disabled and have to go through various processes one thing becomes clear that is hard with ME/CFS and that is...

Some really important questions here I often don’t see raised and often assume it’s because others definitely think bite size chunks vs do it all then rest (whereas it’s been more complicated than that with me albeit so many caveats) I’d love to see an individual thread on some of these...

it’s revelling in cruelty that last one. Yes they each need to be sued, job removed, black mark making them unemployable - which being a disability bigot and harmed should do just as you’d expect for anything else. Something has gone wrong in the funding of the follow-up process that does this...

Clearly a mental health bigot too. Love that people have been misled into thinking with that one that if they use the right term then their insinuation of hatred is somehow acceptable or care. That’s BS it’s clear from this they mean ‘have issues need to be dealt with’. From hilariously the...