Search results

Yep. I've used that one (mirror) as well as it being like x-ray glasses for seeing who people are when they know you have ME/CFS. And I have come to start realising that the word I've been searching for is 'callous' ironically in the last week too when trying to put my finger on what the...

This is familiar. And speaks to how for e.g. ME/CFS unbelievably the disability itself is absolutely huge, but somehow society has managed to find a way to create an even bigger disability it has loaded onto these people. SO big that those with this incredible disability feel better-off damaging...

Yes please to calling them out. And having names for them and terms for what they are doing. This is an important line that we should be able to use about each and every person using faux ideologies and one-liners across the various aspects of LC and ME: whether it is weaponising mental health...

Agreed, and indeed a dermatologist has pointed me to this too

Sadly that is not at all how it works for those in the UK who are under bad GPs. I can completely understand the caution. I had something that eventually resulted in a 'dermatological emergency' and a letter back to GP noting between the lines how wrong they had got me (changed noting in their...

Where on earth did they get that idea from 'in theory'? Well yes if you made it inaccessible to them - and I don't see how that can still be allowed to be a pat statement where noone made any attempt to see what might be possible there. Did they look at whether what they were offering would...

This is the section where I start to disagree with this article. I would say, and have always thought quite the opposite. Without seeking to thoroughly investigate the potential pathways in their entireity e.g. by looking at all factors (not just the 'fear and thinking' ones that are often...

It is a rhetorical device. But one which is like catnip to silly laypersons who are half-listening or tend to summarise-listen where they basically don't listen and then just wait for the one sentence they half-understand whilst they are thinking of what they are going to say. Like someone...

Ohh I like this. What I'm trying to work out is whether it can actually effectively being to look at neurons, even though it gives the impression it might sort of a bit more using the workaround: On the top of head thinking about ME stuff though of course the issue is an analogy I've seen said...

This may be a repeat but basically for university fees there is a Dec deadline after a student enrols end set/early oct by which if they are still enrolled the whole fee is due ie the whole year's fees have been triggered. I’m sort of angling at things like this which would certainly inform any...

:rofl::rofl: I think that’s one ready rolled sausage-machine retort to Paul garner lined up there for anyone using social media! Of course I can almost see the meme too. the ‘expectation effect’ in genius action agsin hey

well of course that process is another source. women like them might find themselves (other female and male doctors) incredibly well served Scraping out anyone who’s had misfortune health wise systematically through the med school app and the training process means it isn’t either a...

At least I can now be reassured it’s reading and living under their crap that is responsible for this reasonable and accurate reaction and one doesn’t have to actually have ME to get it. It’s shocking isn’t it that these grubby/grabby(?) people crawl around collecting funding like some dirty...

Yep on that crap harmful questionnaire stuff, and I’d add a not unreasonable addition: ‘and apologise and admit your inappropriateness’ there is enough in the social psychology schools even if this weird are this lot sit under pretend it doesn’t exist to suggest such things are just ethically...

Agreed it should surely be the case - in any sensible world- that if either committee had concerns it should veto any project. And certainly the sponsor relying on the ethics of another university’s committee regarding whether what they are sponsoring is ethical is extraordinary. I’m guessing...

Yep the “in any way” is a laugh. What is the subject that takes 2 documents and analyses them for how identical they are? I guess that - literally showing how identical it all is to what they have been doing with ME/CFS - could be something AI could be relied on for right now. I mean there...

Yep there is a critical mass issue of making sure it isn’t only the compliant few there in the basis of that implicit not rocking the boat. Ie they have a voice and can input their knowledge which is more relevant than those who can’t relate to the patient as closely. I do think ME needs to...

Nudge theory in action. It’s behavioural ‘psychology’ (the psychology being that of the person doing it as it’s basically using reward and punishment to control and ‘condition’ others) of course all the policies as such were part of that ‘close down options for any other behaviours such as...

Agreed and the consistency across independents who did do it in detail is perhaps the interesting part. I’ve never understood did the life of me why if all clinics were going to do was ‘manage’ why they didn’t allow patients to describe their own pacing needs (which might be eccentric given...

One question that would have been interesting is whether they thought the diagnosis came first THEN the history ‘scavenged for’ . just like the old days of calling a woman mad and someone not listening to her but assuming it’s her mother and just writing that down. Any condition that puts as...