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It was the end of the 90s. Initially HR were okay but any report or assessment on behalf of my employer was hostile and very much of the BPS view. No unions. I think most people do want to keep working. I definitely did and struggled on post diagnosis. My boss knew there was an issue...

What device are you using? I just hit the return key and that drops the cursor down a line.

Maybe I should have qualified what I said as others who had to give up work at the same time as me. I think that makes a difference to how you would have been treated too. I met quite a few teachers who had to stop work around the same time I did who did struggle for several months and then...

That sounds like a totally different situation from mine @Kitty. World's apart. I don't know if Access to Work was even available to.me when I had to quit. There was no help, no advice, no one to turn to. No real capacity to find out either as I was too busy struggling to stay in work. No...

Maybe my situation was different as it was so long ago but the whole fatigue thing was a big problem for me and a real barrier to being taken seriously. Comparing to MS or cancer when those aren't the diagnosis you have may not be helpful. My companies OT was all about the generics of fatigue...

The phrase In a paper co authored by For some reason the term "projection" springs to mind.

Definitely. IM and I recently had to have rather a long meeting over the phone. It was an official thing & involved a rather complex situation. We had plenty of notes prepared beforehand & that helped enormously. Having an agenda & keeping to it really does help. Interesting that although...

In some ways I think there's a place for reminding people to keep some sort of life balance between what you have to do and what you would like to do. This is where the lack of recognition for patients with Long Covid who might go on to develop ME could benefit as I could have benefited when...

Where employees with ME do need to come into the office, even if it's just for the odd day, then their working environment can make a massive difference. I don't know if there's anything that spells this out though. Here's a list of the type of things I mean - Being placed in a quiet corner...

The on air mistake was a pity but I admire & think the better of him for being prepared to publicly set the record straight. Whatever their field, someone who is prepared to step up and say, I got that wrong / i made a mistake is far more trustworthy and, in my opinion, professional than...

Does anyone else get the sensation of sharp pins being slowly pushed through their fingernails? I don't mean down along the length of the nail, I mean perpendicular to the nail and finger. I'd forgotten all about it and today it's made a come back & is really annoying. I can just imagine...

I can see what you mean and I agree it would be nice. I don't think it's realistic though. It would be more appropriate to educate healthcare professionals to be alert to the stigma and bias they themselves have about certain conditions. That there's lots they don't know and that it is...

When I was first diagnosed my consultant told me I had ME but he went on to also use the term CFS. He said if he didn't then others - my GP, employers etc, might not take what he said seriously or be dismissive of what he wrote in reports because he called it ME and they didn't recognize ME but...

There is little to no detail about ME in my records beyond noting I have been diagnosed with ME/CFS. Actually it might say CFS/ME. Whatever. There are consultant letters that contain a lot of information on file in my records but nothing in the records themselves. I don't really discuss ME...

I don't meditate currently because it was causing some issues. These are some thoughts on things you may have already tried. Sitting is the ideal but whatever position you find comfortable and conducive to the meditative state is fine. I find PEM badly affects my cognitive function so that...

I doubt it. Very happy to be proven wrong but as far as I can tell rest means rest in the initial stage of illness and, maybe, for a minimum period after. We're talking very short term measured in weeks. Once they believe the illness has passed then it's time for rehab. Convalescence implies...

To be fair, in the case of young adults particularly, psychologists attached to diabetic clinics can be very helpful to young adults. An example of this is a young teen, especially female, fluctuating hormones makes management of Type 1 very difficult. It's an age where they want more...

No, I understood you weren't referring to patients own money at point of contact, though it kinda is if they pay tax. MUS, IAPT and so are soaking up millions of public funds to keep patients in a "holding pattern". We are not talking minimal resources at all. What's more it's only a matter of...

Out of sight and out of mind for physicians who are overworked or can't be arsed. Out of money? No. These patients are a source of endless cash. I'm put in mind of a myth I heard many times while working. Some guy who was absolutely brilliant. Indispensable. He could and would fix any...

He probably would. The personal attack or dismissal by way of deflecting from the content of the discussion. The facts remain though. Also, when assessed early on by a psychiatrist, this discussion came up. I made some of the arguments as @Michiel Tack does on his blog, though not nearly so...