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  1. Hoopoe

    Difficulties of living with an illness not considered a 'Disease': Focusing on the illness behavior of ME/CFS, 2020, Nojima

    Nothing wrong with wanting to dispel a label because it is false. The "doctor shopping" in my experience is indeed the ordinary reaction to not getting help.
  2. Hoopoe

    Coronavirus - worldwide spread and control

    For example, I have had an itchy, twitching and runny nose in the last days, and noticed an unusual muscular weakness. I do a few pull ups every day, but barely managed to do a single one instead of being able to do three in a row like usual. Today that had improved. I'm not 100% sure if that...
  3. Hoopoe

    Coronavirus - worldwide spread and control

    I'm not worried (about myself). I think ME/CFS makes me less susceptible to infections. It's a bit hard to distinguish between mild infection and ME/CFS fluctuations but infections when they are clearly present seem to produce intense symptoms and fever less often than for other people...
  4. Hoopoe

    Coronavirus - worldwide spread and control

    An Italian biologist said that in southern China the population has a high prevalence (over 60%) of a HLA B27 variant that increases susceptibility to the coronavirus. In Europe this variant is uncommon (about 1%).
  5. Hoopoe

    Achieving symptom relief in patients with ME by targeting the neuro-immune interface and inducing disease tolerance (2020) Rodriguez et al

    Note the information in the picture. What is confusing however is that fatigue did not improve. Is it not very likely that fatigue is closely related to metabolism? At least I think of it that way.
  6. Hoopoe

    Coronavirus - worldwide spread and control

    This morning they reported four deaths. Now there are six. The last one had cancer which was presumably a large factor. They were all relatively old too.
  7. Hoopoe

    Coronavirus - worldwide spread and control

    The effect of seeing hospital staff with face masks was that of making me very aware of a risk of infection. So I kept a distance to other people and washed my hands. In that sense face masks work. They might also work by making people not touch their face. Limit droplet spread is probably...
  8. Hoopoe

    Coronavirus - worldwide spread and control

    TV news from Italy this morning: some smaller towns are in lockdown. 4 deaths so far. The authorities are trying to limit the spread by canceling sports, religious and other social events. Schools and universities are closed. They showed a tent set up for examining infecteded cases, prepared in...
  9. Hoopoe

    Achieving symptom relief in patients with ME by targeting the neuro-immune interface and inducing disease tolerance (2020) Rodriguez et al

    Presumably the idea is that the vibrations that to the body create the impression of turbulent airflow trigger some reaction while sufficiently different vibrations do not. But they don't explain this part well.
  10. Hoopoe

    A Future Without ME/CFS: True causes and effective treatment strategies. Seminar with Dr Dietrich Klinghardt plus guest speakers. 15th Feb 2020

    Isn't it amazing how they are able to figure all this out? :rolleyes: But somehow we can't find these microbes.
  11. Hoopoe

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    Out of curiosity: sometimes I felt like my respiratory volume was abnormally low, but without causing any apparent problems. Is it possible that I'm adapted to a state of reduced oxygen consumption? Some of the research suggests there is reduced oxygen consumption but I don't know if that...
  12. Hoopoe

    Marketising the Mental Health Crisis: How the CBT Empire-Builders Colonised the NHS

    I did eventually benefit from psychotherapy in a certain sense because years later, a different therapist said something to my family (I don't know what exactly) and they treated me better from there on. I don't think I actually benefitted from the therapy itself. In my view a problem is that...
  13. Hoopoe

    Marketising the Mental Health Crisis: How the CBT Empire-Builders Colonised the NHS

    Funny personal story: I went to therapy early on in my illness when I accepted the idea proposed by family members that it was a psychological problem (I was young and naive). I now recognize that the psychiatrist had a psychoanalytical orientation and the therapy sessions involved her waiting...
  14. Hoopoe

    Understanding persistent physical symptoms: Conceptual integration of psychological expectation models and predictive processing accounts, 2020, Kube

    Health psychologists acquire false and dysfunctional beliefs about reality during training and then wreck other people's lives with them and are also quite immune to disconfirmatory information. It's also amusing to see them struggle to find new ways to say it's all the mind and imaginary while...
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