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I noticed that when I'm mentally exhausted due to mental activity, my gait changes and I walk like an old man. It seems to be the mental exhaustion at least (maybe it's also orthostatic intolerance and sitting). Another great way to produce abnormal changes visible to observers: reaching down...

I have done cognitive testing and it was within the norm but I'm 100% sure my performance has suffered. That means I think that the test I did is not suitable for identifying the problems I have. I suspect the problem could be reduced blood flow to the brain. Are there cognitive tests suitable...

I don't think I can handle this level of absurdity. Reality feels rather surreal at the moment.

Yes, reports of harms can be used to argue against a treatment. Does she think this is unfair? My eyes are rolling so hard right now. :rolleyes: Speaking of struggling against something... it looks a lot like proponents of LP and CBT and similar approaches are struggling with the reality that...

Well done. This is good. This should be A NIH working group. Could this expanded a little bit? I think it would be justified to say that this is reveals a dismissive attitude towards patients reporting harm and gives the impression that there is no justification for such reports. PS: you...

I believe that articles that try to expand mental health problems to broad sections of the population are damaging for patients with serious mental health problems. If a person with ordinary levels of worry is told that worrying is a mental health problem, that person might conclude that mental...

What about people who aren't psychologically disturbed (fearful compliers) or troublemakers (active resisters)? Do they exist?

Also, NAFKAM director Miek Jong could be a valuable ally.

Didn't Flottorp have some role in the Cochrane review of exercise therapy for CFS? I know I've seen her name before and it was associated with bad science.

It's not yet clear that protracted covid-19 is the same as ME/CFS or at least close enough that they are not easily distinguishable.

In Lombardy the cases are increasing again. The restrictions were eased some time ago.

A comment by an expert in clinical trial design could be useful to give to the journalist.

The description of how LP supposedly works is scientifically implausible. https://www.researchgate.net/publication/326176969_Understanding_the_Lightning_Process_Approach_to_CFSME_a_Review_of_the_Disease_Process_and_the_Approach I mean for fucks sake, they think they can cure a disabling...

Who knows. Maybe they'll do something useful for covid 19 patients that have lasting symptoms, like telling them they are not going crazy and helping them deal with work absence.

I find it strange that there is a press release saying there will be a study but there's no details about the study.

Exactly. Trying to resist the illness, ignoring it, and doubting it is normal and everyone does it at some point. If that was all it took to get better most people would recover on their own in little time. The BPS people, thinking themselves smart and patients very unintelligent, say "have you...

Not sure where else to put this. This got me thinking about diagnostic criteria. Does anyone else think that a mismatch between expected ability to do things, and actual ability might be an important feature of ME/CFS? Where patients start things, thinking they'll be able to finish but then...

That description of symptoms could have written by patients on ME/CFS social media channels. https://www.nytimes.com/2020/05/10/world/europe/coronavirus-italy-recovery.html It's a bit sad that people don't always realize that the persistent symptoms part could very well be the same illness as...

I thought this was an interesting article but it seems a little hard to believe as well in some places. Better understanding of the relevant biology could do a lot to advance care for patients. One notes a certain similarity to the diagnostic criteria problem in ME/CFS. They struggle with the...

Mikovits must be getting some very effective and thus not inexpensive help to boost her social media presence and produce a professional documentary. She has 126000 followers on Twitter despite joining in April of this year, no way this is legitimate.