Search results

Trial by Error by David Tuller: Nudge for BMJ About Music Therapy; Letter to "Health Anxiety" Expert I have written two more letters and have posted them below. The first letter is a nudge to BMJ’s research integrity department, which missed a deadline this week for providing me with an update...

Trial by Error by David Tuller: Nudge for BMJ About Music Therapy, Letter to "Health Anxiety" Expert I have written two more letters and have posted them below. The first letter is a nudge to BMJ’s research integrity department, which missed a deadline this week for providing me with an update...

She's received quite a few responses mentioning ME/CFS

A month ago, several colleagues and I wrote to BMJ about the problematic Norwegian study of CBT-plus-music-therapy for treatment of adolescents with chronic fatigue post-mononucleosis. After I sent a nudge two weeks later, I received a response from a research integrity coordinator, promising an...

A new article from Dagsavisen. This time about the private fundraising to hire a law firm to make a judicial assessment of the National Insurance Court's ruling on ME patients and the allowance for young disabled people. The fundraising is initiated by several young ME sufferers with Victor...

Dagsavisen with a follow up article where ME patients' struggle with the Norwegian Labour and Welfare Administration is confirmed by Elisabeth Thoresen, spokeswoman and leader of the organisation AAP-aksjonen who is protesting against a tightening by the government of the process to achieve...

Nice to see chief reporter in The Times excited about these excellent numbers and encouraging people to sign up :-)

In Norway you usually get 66% of your previous salary in disability benefits if you get sick/injured and is no longer able to work. But what if you got sick/injured before you started working? Then you get next to nothing and the system therefore has an extra allowance for young disabled...

Ah, I see! Yes, that's a valid point. She is balancing in the debate trying to find common ground (if that's possible) and taking both side's arguments into account. I hope that increases the chances for those on the other side or those sitting on the fence to at least be willing to read her text..

Two-Day Cardiopulmonary testing of severe ME patients? :eek: That's a huge sacrifice they've made for the sake of research.. Maybe too big..

I'm not quite sure I understand? This was written in support of ME patients.

Psychologist Grete Lilledalen has written an excellent comment in Dagbladet about the recent articles on the so-called "ME war". The consequences that further stigmatization has for ME-sick children and adults won't leave me. Nor how unreasonable it is that health professionals portray...

Article from two days ago in the Swedish newspaper Expressen. Includes an interview with prof. Jonas Bergquist. He says among other: One explanation for why some people get sick for a long time and have a hard time with the recovery after having covid-19 may be that the energy function in the...

Here's a link to a PDF about this from the Danish Health Authority titled "Model for interdisciplinary treatment course for patients with diffuse persistent symptoms of low metabolism" (my translation of the title, the PDF is in Danish)

I put this here, even though PACE is not mentioned in this New Yorker article from two days ago. But other bumps in the road for The Lancet editor in chief are mentioned and he gives this interesting quote regarding the newly retracted hydroxochloroquine study: “Science is not immune to having...

Copied from this thread I put this here, even though PACE is not mentioned in this New Yorker article from two days ago. But other bumps in the road for The Lancet editor in chief are mentioned and he gives this interesting quote regarding the newly retracted hydroxochloroquine study: “Science...

Looks like an excellent and important letter. It is signed by over 60 international ME experts.

NBC NEWS Some COVID-19 patients aren't getting better. Major medical centers are trying to figure out how to help. David Putrino, physical therapist and assistant professor at the Mount Sinai Health System, New York says it's a very real condition. He's begun to develop "a kind of protocol"...

Thank you so much, @Yessica ! I'm so sorry to hear about your loss. Agree with @Anna H it sounds like it was a wise decision to wait. :hug:

The Conversation June 24th - What doctors know about lingering symptoms of coronavirus by prof William Petri The article discusses several serious symptoms. Interesting that it's only in connection with post-infection fatigue prof Petri believes mental health intervention to COVID-19 survivors...