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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3028106/ Chronic fatigue syndrome and complement activation Robert Dennis Geller; Patricia C Giclas Abstract

I'm not sure how reliable that Dubbo finding was. From memory, the baseline testing was done after the onset of the acute illness. In some cases, it was quite a long time after the onset. So, rather than measuring how bad the acute infection was, they may have measured how people were feeling...

It's possible Barry, although we have no evidence that being a couch potato is protective against ME/CFS and pushing on with exercise while in the acute stage of being ill is a risk factor. Given that there is no evidence, I don't think we have to go with that idea. It's more likely that people...

That's kind of you @Perrier, and I agree that it's definitely worth trying to educate Ms Diserholt to at least limit the harm that she does. But, she has already spent what she suggests is a great deal of time interviewing at least 9 people with ME/CFS and thinking about what they said to her...

I think you are wrong on this @rvallee. Manure eventually turns into something really useful given enough time. Whereas this just keeps stinking. It's 2020. It's hard to believe that female predominance can be used as evidence of mass psychogenic illness in a medical textbook. Where's the...

Yes, and of course it's mainly the therapist who is insulated from harsh reality, with every naturally occurring recovery bolstering their sense of having the solution. No science required. The client might get some temporary reassurance that they are facing a problem that can be overcome by...

She seems like a nice well-meaning young woman. I know we are really careful when using the word 'cult' on this forum, but that was what came to mind as I listened to her - a capturing of the mind with the seductiveness of being part of a group with 'special knowledge' that others do not have...

I can't imagine many of you made it through to the 40 minute mark, but I was pitting cherries and so time passed. There were a couple of passages just after 40 minutes that I thought were worth recording here: Diserholt: a very complex area, where fatigue is both this sort of trying to use...

I agree that it was unlikely to find a positive result @rvallee, but sometimes research has to be done to disprove something. At least it looks to have been done well enough to find that these drugs weren't helpful. I think this finding, especially the finding of more harm, is useful for us...

I emailed Professor Friedman, asking about the trial, including whether the blinding might not have worked, and he very kindly replied: Which is a shame.

This study was double-blinded. It's a bit odd that the study was finished in 2010, but not written up until 2017. The reduction in fatigue could be significant e.g. an average reduction of 32 could mean that someone scoring most of the 42 questions as most severe (5 out of 5) at baseline...

Posts about a study on use of sildenafil in chronic fatigue syndrome have been moved to a new thread here: Use of sildenafil (viagra) to alter fatigue, functional status and impaired cerebral blood flow in ... CFS, 2020, Pfizer

From the above article: I think his twitter name 'mellojonny' is aspirational rather than rooted in fact. Perhaps he should see someone about those feelings. Perhaps he'd be better suited to another profession, something that didn't require him to interact with people.

A long series of posts have been moved here: Rituximab and placebo response

Possibly people felt that the recommendations would not be particularly influential given that the Priority Setting Partnership process (for identifying priority research) is underway?

I and my children have used augmentin quite a few times over the years, mainly for ear infections, although just in tablet form. I've never noticed any significant side effects, including since developing ME/CFS. I hope you can get on top of your infection soon.

Or staying in hospital required a lot less effort than their normal life did, so some of the people felt quite a lot better at the end of the hospital stay?

A bit off-topic, but too pleasing to resist: In that article about the paper on mental illness after Covid, Coyne mentions the campaign against people with ME/CFS by the SMC as an example of how that lobby group contributes to the media getting things wrong It goes on to mention the draft NICE...

How many bottom drawers did they look in though?