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https://www.afr.com/politics/federal/cia-agents-targeted-by-russian-spies-in-australia-20201021-p56798 There was a recent report of two more people claiming to have suffered from this problem in Australia.

I've had what seems to be ME/CFS for around 7 years, with the last two also going though the perimenopause (aged 53, 54). I find it hard to separate out symptoms into ME/CFS and menopause buckets. Really, the only thing I have noticed that I would say is definitely menopausal is that it's...

Wearable technology could indeed be useful in helping children/young people with ME/CFS manage their activity levels. But you just know that, in the hands of these clinicians, it could end badly. I can imagine them trying to get a child to sleep less or get to school, with a promised reward...

What evidence is there for children with ME/CFS producing less melatonin? There are questions about the safety of melatonin supplementation in children. Oh, good grief. These families have got enough to be dealing with, without cards that upgrade each week and colour-coded time. Yay for the...

Treatment? What treatment? This is a 2020 paper. It might be useful when commenting on the NICE Guideline draft if the draft says that CBT is useful in helping patients adapt to their illness. Clearly, the idea of CBT for ME/CFS as understood by at least some clinicians has nothing to do...

It's new stuff on the immune responses - those two papers in @Ravn's post are 2020 ones. The following New Scientist article (also very recent - 15 Oct) is a readable account of lipid droplets: Read more...

Mark Edwards and Jon stone are on the medical advisory board. There's a section of questions, all written in caps. I won't replicate it here, but caps text is a very odd choice for a population that has brain fog and visual disturbances listed as symptoms. "The most common treatment is...

This members only thread has a lot of discussion and information on this issue: UK: Flu vaccinations 2019, 2020

A post about United Kingdom funding for research into policy responses to Covid-19 has been moved to this thread: United Kingdom: MRC and NIH funding for Covid-19 and long Covid

:rofl: Setting aside the fundamental issue of no real animal model of CFS, I'm not sure that even this statement about prevalence of gynaecological issues and sexual dysfunction in CFS is true. The only epidemiological study on this I can recall was very flawed.

Others have said it already, but I also want to say that this is a terrific article, one I would like all health professionals to read. Thanks Nadine. I wish there was more attention paid to families with multiple ME cases. I can't help but feel that some careful Dr House-like...

But these estimates are built on surveys that mix up the symptoms of ME with depression and anxiety. Exercise alters brain activation in Gulf War Illness and ME/CFS. Washington et al. 2020 A sample of 38 people with ME/CFS found 18% had major depression. Self-Management of Chronic Fatigue...

The clever/awful thing about this paper and the BPS approach in general is that it doesn't say that the biomedical issues don't contribute. So if a biomedical cause is identified in someone, the BPS clinician can never be wrong. It's just that they see the biomedical issue as such a small part...

Although written about French chronic lyme groups, it looks as though the accusations would neatly fit the BPS/psychosomatic medicine promoters. This paper for example might kindly be termed 'non-specialised research' (and less kindly, but more accurately, a 'bigoted rant'). The rise of the...

I'm not sure about the idea that it's really important to do a CPET to identify your anaerobic threshold, so that you know how hard to exercise. Or the idea that there is a group of people whose BP goes up a lot during exercise and a group that doesn't have this happen. The problem with both...

Here are two threads on work done by Lyn Hodges and her team: Physiological measures in participants with CFS, multiple sclerosis and healthy controls following repeated exercise, 2017, Hodges et al This is a Masters thesis by Tessa Nielsen, supervised by Hodges The Timeline of Post Exertional...

One for the 'Unblinded treatment, subjective outcomes' bin.

Thread on a new guideline for Q fever fatigue syndrome in the Netherlands: Revision of guideline on Q fever fatigue syndrome (QFS), 2020, Keijmel et al

Psychological factors being 'fear avoidance', catastrophising, 'symptom focusing', 'damage beliefs', 'embarrassment avoidance', 'all or nothing behaviours' and 'avoidance behaviours'. So, the association of death with fatigue suggests that the patients might have been perceiving things...

A large number of posts about the Cochrane Review of Psychological Therapies for the Management of Chronic Pain have been moved to the relevant thread: Cochrane Review: Psychological therapies for the management of chronic pain (excluding headache) in adults, 2020, C De C Williams et al