Search results

The idea of acetylcholinesterase inhibitors interests me because I and my two children were exposed to methyl bromide and its downstream products immediately before becoming ill with ME/CFS. The authors have this idea that acetylcholine dysregulation makes glutamate receptors over-activated and...

The title of this thread has been changed from Concerns about craniocervical instability surgery in ME/CFS to The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread This is because we would like to make it clearer that...

It is a good article, one that might convince some people not sure that ME is 'a thing'. I've copied the link to a thread with another article about Davie Provan. Davie Provan - ex-footballer with ME

A number of posts relating to social media have been moved to the Structural Spinal Problems and ME - blogs and social media thread

The thing is, this isn't actually an experiment. It's propaganda. There's no controls, so no one has any idea how many of these children would have got better over time without the 'psychologically informed physiotherapy'. The fact that outcomes were less favourable for those children whose...

I think I titled the thread. I agree that there probably isn't a difference. My thinking was that the PVFS covered the period up to 6 months, and also it covered the bases for those people who think there is a difference. Having a family where three of us got ME/CFS at the same time after a...

Nope - quite happy to feel furious about this drivel of an abstract, which is as bad as any I have seen. Quite happy not to please these particular 'unreliable others'. Attributing the dropout of patients from psychotherapy to looks a lot like the authors are avoiding coming to terms with the...

Where I am, CFS is mostly seen as synonymous with ME/CFS. I'm not aware of any significant numbers of people having a psychiatric condition that sometimes develops after an acute viral infection and is essentially deconditioning. The PACE trial found no evidence of such a condition. I think...

I'm assuming this project is led by Zack Shan of the University of the Sunshine Coast. Shan's work has been pretty good I think. See this thread for some background. @Simone Australian ME/CFS neuroimaging project receives $1.2m govt grant

There's an old thread in the members only area. https://www.s4me.info/threads/mast-cell-activation-syndrome.3843/page-4 We have quite a lot of threads about MCAS on the forum: Mast Cell Activation Syndrome – What it Is and Isn’t, 2020, Hamilton & Scarlata TPC1 deficiency or blockade augments...

A new public thread about MCAS has been created and relevant posts on this thread have been moved there Mast Cell Activation Syndrome (MCAS) - discussion thread

That is extraordinary. It's easy to think of ways those exclusions might affect the male: female ratio. For example, the (female) nurses in the nurses home would probably all be treated as inpatients whereas male doctors would be much more likely to be able to convalesce at home, cared for by...

I agree with Medfeb's point about the variability of functioning over time. It's really hard to assess and quantify that. One thing I struggle with in assessments like these is wanting the reality of disability to be acknowledged but also wanting to see myself and be recognised as a person...

That abstract has to be read really carefully - distinguishing the subgroup with CFS from the broader group with chronic fatigue or CFS after EBV. On objective measures, the CFS subgroup was worse than the broader group with chronic fatigue or CFS. As @Michiel Tack says in that tweet, this...

Ragwort :cautious: a pernicious weed.

A number of posts have been moved to Structural spinal problems and ME - blogs and social media

This thread has been made fully moderated for now due to the speed and nature of the posting. Please keep on the topic of the title and original post.

Wikipedia Latah good grief :facepalm:

But PC1 doesn't look to be adding anything to the separation of the ME/CFS sample from the controls. Arguably, only the 5 out of 11 of the ME/CFS dots are a separate cluster - and they are separated out on the basis of PC2. And PC2 only accounts for 16% of the sample variance. That's not a...

Welcome to the forum @DMissa. It's great to have you here; thanks for taking the time to comment.