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A post about the suicide of a woman with Long Covid has been moved to the In Memory thread

Yes. Although there is still the risk that the intervention has taught the person that they should not think they are unlikeable or afraid of spiders. And therefore, they know that, when they are asked at the end of the intervention, 'are you unlikeable/afraid of spiders' they should say 'no...

Irrefutable medical abnormalities and fatigue? Not a problem. Sure, your brain is a bit worse for the wear, but the fatigue is something that can be fixed by thinking right. It's perfect, as there's no pressure to fix any holes in brains. So long as you get people filling out end-of-CBT...

https://emedicine.medscape.com/article/315632-overview I've said before, I see a lot of similarities between ME/CFS and GBS. I have not understood why ME/CFS is viewed so sceptically when GBS is acknowledged to exist. My symptoms occurred after a not particularly remarkable gastrointestinal...

This tweet by the UK Royal College of Psychiatrists about their realisation that there is an antidepressant withdrawal syndrome and that it can last several years was posted by @rvallee on another thread: (edited to explain tweet in case the link is broken.)

I might have missed it of course, but where is the patient involvement in the supervisory team? I mean, of course the joy of doing research on children is that it can be assumed that they don't know enough to warrant being involved in any way other than being data points, but where is at least...

As the twitter thread suggests, another outcome of less social contact was less colds and flus. I had fairly bad childhood asthma, and specific allergies would trigger it. But most of the times when I had serious attacks, respiratory infections were involved. I remember times pre-Covid-19...

I'm not sure about your numbers? From Tables 2 and 3, for total sleep time as determined by polysomnography: CBT: baseline 361.6, post-treatment 372.4 >> increase of nearly 11 minutes Relaxation therapy: baseline 342.2, post-treatment 337.9 >> decrease of 4 minutes Placebo treatment: baseline...

I have only read the article, but I thought it and the associated paper were interesting because: I had no idea that MS onset in childhood was not uncommon - anyone with a child with ME/CFS symptoms needs to ensure that MS is carefully ruled out It's interesting how fatigue is again identified...

Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was...

I've been quite annoyed with this study, with their use of minutes rather than hours of sleep time, so the fact that no one was getting a normal sleep time was difficult to see. And their charts with truncated axes, so you think tiny differences matter. Here's a chart of the data, with the x...

There's lots that is good about this study. But, surely the main objective outcome of a treatment for insomnia is greater sleep times? At baseline, the sleeplog (patient report, but multiple nights) and polysomnography (highly objective, but just one night) suggested that the participants were...

copying the link from the tweet above https://mg.co.za/africa/2021-02-28-living-with-long-covid-in-lagos/ I thought this was a terrific article, well worth a read. It dates back to February 2021. Well done to the author, Bolu Akindele.

A number of posts about an article 'Why Britain is now the capital of Long covid' have been moved: BPS attempts at psychologizing #LongCovid Edit: Some posts have been moved to: UK: TUC (Trades Union Congress): Long Covid at work surveys and reports 2021 onwards

https://www.manchestereveningnews.co.uk/news/greater-manchester-news/its-like-being-possessed-demon-18396486 It is fairly clear from this quote from June 2020 that Paul Garner knew what he was dealing with, was feeling optimistic about his own recovery and expected that most people would get...

https://blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/ Indeed, and as I said before, I do not understand how Paul Garner has come to hold his current views or his evangelism about sharing those views with the world. I do not share his views (ed.) or...

To me it looks as though he was well on his way to recovery when he was captured by the Norwegians with particular views. How would you have us demonstrate our empathy for Paul Garner? Paul Garner was uniquely well placed to make a positive difference to people with ME/CFS. He's benefited...

We have a thread on a 'blood cleaning' process that appears to be related to a Hamburg clinic offering treatments for ME/CFS and Long Covid: Nature - Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?, 2021, Bornstein et al Here's a link...

Am I right in thinking that a test that involves going just a bit beyond ventilatory threshold on consecutive days would be enough though? I don't know what amount of exertion required to get to that point is for people at different levels of ME/CFS severities, but I suspect many of us have to...

Thanks for doing that @cassava7. That sounds encouraging, but to me, the very clear separation and the nature of the data continues to leave room for doubt. There is a conflict of interest in the clinic demonstrating that they provide a test that is essentially perfect in identifying people...