Search results

I believe so. Not scans, something else. But for the life of me I can't recall what or who or when

Possibly results from this grant? https://www.s4me.info/threads/australian-me-cfs-neuroimaging-project-receives-1-2m-govt-grant.12748/ See also this study...

Possibly results from this grant? https://www.s4me.info/threads/australian-me-cfs-neuroimaging-project-receives-1-2m-govt-grant.12748/ See also this study...

Possibly results from this grant? https://www.s4me.info/threads/absence-of-bold-adaptation-in-chronic-fatigue-syndrome-revealed-by-task-functional-mri-2024-sch%C3%B6nberg.39688/...

In my variety of English 'feeling sick' is ambiguous, it can mean both. In real life and in context the meaning is usually clear. But context is typically lacking in questionnaires, so yes, plenty of opportunity for confusion. Ditto for 'feeling ill'. I've come across pwME who seem to be...

Yes, the 'or' is the problem here. And this one's not the only paper I've seen this 'or' in. There should be two separate questions - one about fatigue and one about feeling ill. Until researchers start asking more precise questions their papers remain uninterpretable Which is why I wrote I...

I've no experience with late dumping syndrome, nor with acarbose, so not much help to you @Haveyoutriedyoga However, for a period of 2-3 years I had all the symptoms highly suggestive of early dumping syndrome. It started out of the blue, disappeared again by itself, and appeared unrelated to...

I don't think this study assessed symptoms other than fatigue (physical and mental) and pain? I would expect these to be common in a number of other diseases, including for longer than 14 hours. In fact I'm surprised the number of pwMS reporting this is not higher (I used to know quite a few...

Julia O is planning a follow-up on this study (as a PhD student with Prof. Chris Ponting) and is looking for PPI participants https://www.s4me.info/threads/patient-and-public-involvement-opportunities-in-me-cfs-and-other-research.35017/page-2

Thread here https://www.s4me.info/threads/long-read-sequencing-characterises-a-novel-structural-variant-revealing-underactive-akr1c1-with-overactive-akr1c2-severe-fatigue-2023-oakley-et.35423/#post-495716 And welcome Julia

Two threads authored or co-authored by Jessica Maya (only searched thread titles so may have missed some) https://www.s4me.info/threads/surveying-the-metabolic-and-dysfunctional-profiles-of-t-cells-and-nk-cells-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-maya.34377/...

Krista's PhD thesis, embargoed until July 2025 https://www.s4me.info/threads/characterising-the-electrophysiological-properties-of-cells-in-health-and-disease-on-me-cfs-2024-clarke.39168/

Tentatively answering my own question: it might be relevant. Krista is working on the MEA/MERUK funded project that's following up on Davis' findings, see this thread

Ah, missed that date 2025 Did a quick search to see if some of the papers included in the thesis have been published separately as sometimes seems to happen but the only published paper the thesis author appears to have been involved with to date is one on some extremely technical aspects of...

Didn't read the paper, the abstract alone passed my tolerance threshold for unwarranted leaps of logic. Plus I see no need to give the authors a buzz by upping the download stats for their paper I wouldn't bet against having yet another LP practitioner in NZ soon. Maybe the first author, maybe...

Anyone been up to reading this? Is study 1 relevant for understanding the OMF nano-needle results? The three studies sound quite separate but does the author draw links between studies 1 (ME) and 3 (chondrocytes)? Because chondrocytes make extra-cellular matrix which has been discussed in a...

The article is being republished by others. My husband spotted it on RNZ. Argh ETA: Apparently the Herald has picked it up, too. Depressing They know exactly who and what they're referring to here. They're not the only ones in NZ citing "Scandinavian researchers" e.g. Arroll who's involved in...

I wouldn't bother, it would just encourage the buggers. Next there'll be an article saying "felt an uneasiness in writing an article equating CFS/ME and Long Covid with neurasthenia and hysteria - and received hysterical emails from hysterical females, point proven". Or something in that vein...

Indeed. No surprises there And they didn't even look for missed ME diagnoses, they only checked if people diagnosed with ME fit ME diagnostic criteria based on the patchy info on their medical records. Spoiler alert: most didn't (but no way of telling if that was because they were misdiagnosed...

I quite like the up-time vs down-time measure provided it's automatically collected by a reliable device. However, it just occurred to me that in my case this measure correlates both with better and with worse periods. I've no actual data to back this up but the two main reasons I spend more...