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  1. Hoopoe

    Psychological flexibility as a predictor of work engagement and symptom severity in personnel with chronic fatigue syndrome, 2025, Surendran

    You could find a very large number of correlations between things in these patients. It's not worth publishing a paper just to say that you've found some correlation and then speculating that one of these things is causing the other and a potential treatment target. Psychological flexibility...
  2. Hoopoe

    Life has less meaning without work, but most work would make me sick

    Responding to a member's now deleted post about how they decided to work on a problem, and how that meant that other life decisions flowed from that. It's a good story. Thanks for sharing. I wonder how your story will unfold. I know what you mean. I can only really work on something when...
  3. Hoopoe

    Preprint Genome-wide study of somatic symptom and related disorders identifies novel genomic loci and map genetic architecture, 2025, Fominykh et al

    I think it means: that the signal is weak, and that this could be due to these diagnoses being unspecific or genetic factors playing a marginal role.
  4. Hoopoe

    Preprint Genome-wide study of somatic symptom and related disorders identifies novel genomic loci and map genetic architecture, 2025, Fominykh et al

    They mention that in the validation cohort, the identified SNPs were not statistically significant. It seems contradictory to think of these disorders as having no organic basis and then identifying genetic causative factors. The interpretation of the results seems to be keen on reassuring...
  5. Hoopoe

    Life has less meaning without work, but most work would make me sick

    I'm still going to the service for autistic adults but it doesn't offer much besides some social activities and psychotherapy. I feel like I need more concrete guidance that allows me to understand my limitations and strengths, techniques to manage my specific problems (like pacing for PEM, but...
  6. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    There's his sister which is allegedly a CBT therapist treating CFS. I'm sure that he is not well because people who are well don't behave like this. They are balanced, accepting of reality and don't cling to fringe ideas promising miracles. It's easier to be in denial and use self deceit to...
  7. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes. It may be particularly prominent in some social circles, with harsh consequences for those failing to live according to these values. Maybe disability and chronic illness is seen as personal failure. The words "the only disability is a bad attitude" come to mind. In other social circles...
  8. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Garner may be coming from a social environment where not exhibiting values that he is now advocating for is considered shameful. This could explain why he is so motivated to show that he's not part of the group that deserves to be shamed.
  9. Hoopoe

    Life has less meaning without work, but most work would make me sick

    This is what I've been trying to do for the last few years. First, working on my physical strength and endurance. Then dealing with the affective deprivation and working on my social skills. The driver' license. Trying to continuously do new things, visit new places and discover my limits. Now...
  10. Hoopoe

    Life has less meaning without work, but most work would make me sick

    I don't know if I should try to find out what I like, get good at it and transform it into a job (most likely a small one). Or if I should aim for few hours per week but relatively high pay and express creativity and find satisfaction in hobbies. I have some financial support, and survival is...
  11. Hoopoe

    Associations between emotional awareness deficits and somatic symptoms in a community and clinical populations: a cross-sectional study 2025 Kang+

    Re. judging the appropriate level of concern/distress. Maybe they know some statistics about this category of patients and therefore know it's probably not life threatening. Even if an illness is not life threatening, the possibility of permanent disability and continued decline are horrifying...
  12. Hoopoe

    Associations between emotional awareness deficits and somatic symptoms in a community and clinical populations: a cross-sectional study 2025 Kang+

    Yes, there are two incredibly obvious alternative explanations for the correlation. The first is that the patients have an illness that affects the body and the brain. The affected brain cannot perform all of its usual function as well, and the result is things like deficits in emotional...
  13. Hoopoe

    Life has less meaning without work, but most work would make me sick

    Translating medical reports from one language to another. But it doesn't inspire me... and AI is good at doing this kind of task so the pay has declined a lot over the last few years. I've often thought that when it comes to MUS, doctors need to hear the patient perspective and not just the...
  14. Hoopoe

    Life has less meaning without work, but most work would make me sick

    One job that I could probably do with little difficulty would be medical translator.
  15. Hoopoe

    Life has less meaning without work, but most work would make me sick

    The desire to cultivate critical thinking here is very valuable and I can say that it really changed me as a person. A few weeks ago I had a conversation with a psychology student who was taught that when many studies find the same result, it means that it has been proven by science. I could...
  16. Hoopoe

    Life has less meaning without work, but most work would make me sick

    I liked programming because it rewards being thoughtful and precise and allowed me to build things and be creative.
  17. Hoopoe

    Life has less meaning without work, but most work would make me sick

    After my experience with the man nearly dying from an allergic reactions, I thought about doing something in the medical emergency response, but that requires a training course and being available for service for an entire shift and also doing night shifts. Not compatible with me. There was a...
  18. Hoopoe

    Life has less meaning without work, but most work would make me sick

    A bit of everything, in order of importance. A sense of purpose, knowing that I'm doing something to make the world better. Money to increase my quality of life. Being part of a group. Learning new things. I don't know what achieving something professionally feels like and I would like to find...
  19. Hoopoe

    Life has less meaning without work, but most work would make me sick

    I wanted to describe my current situation and am hoping for some useful advice. I don't think that I can reliably work more than 2 hours per day without sacrificing an unacceptable amount of quality of life. I never completed high school because of the illness and am now 40. I considered...
  20. Hoopoe

    PEM discussion thread - post-exertional malaise

    If I started from a well rested state, I can do intense exercise for a short amount of time, without triggering PEM. I can also do other activities without significant problems. In fact that these activities are so unproblematic and rewarding is a problem, because it makes me want to do more...
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