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One can see that the BPS disinformation is working really well. They have told doctors that CFS is fatigue. The doctors then think CFS is an unspecific nonsense construct that most closely resembles depression.

Fluge and Mella said they have seen ME/CFS cases who later developed cancer, and that responded to treatment of cancer.

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is characterized by various disabling symptoms including exercise intolerance and is diagnosed in the absence of a specific cause, making its clinical management challenging. A better understanding of the molecular mechanism...

Someone on Twitter pointed out that the "Trust Lead" position is held by Michael Sharpe. The page lists Dr Annabel Haldane (CFS) which is the contact person in the job advert. https://www.ouh.nhs.uk/services/departments/psychological-medicine/clinical-service.aspx Could it be that this service...

@DMissa any comment please?

I came back from a walk and felt exhausted walking up the stairs, slowly and with a lack of strength. 40 minutes later I still feel exhausted. It can also give a sense of vitality, good circulation and various positive feelings but that's hard to reproduce. The more typical response is feeling...

Looking at the most common symptoms, it appears Recover re-discovered the ME/CFS phenotype, plus a few minor covid-specific problems. With a closer examination some differences could emerge but at this level of detail it looks like a symptoms typical of the ME/CFS phenotype dominate the clinical...

In my opinion this is very likely. Individual rare diseases are rare, but there are so many of them that the overall prevalence of illneses in this category is not so low. A portion of them can manifest at the typical age of onset of ME/CFS, and have similar symptoms, and even appear after...

There is no way to estimate the size of nonspecific effects other than with a blinded and properly controlled trial. The size of nonspecific effects will depend on the specific contexts in a clinical trial. We know that some factors will increase nonspecific effects but we can't predict things...

A look at her twitter feed shows attention to LC.

Yes, a lot of sarcastic comments that show frustration, but also show how they need for training. The frustration with ME patients should improve once they better understand ME. Also I'm getting the feeling they underestimate that a correct and rapid diagnosis of ME is useful for patients.

This could lead to funding of CBT/GET-like research that is presented as being of higher quality. In the NICE guidance, the low quality rating was in part the result of using outdated case definitions. What if the CBT/GET proponents use some newer case definition? Then their research might be...

Next thing they're going to say that the dysregulation persists in long covid because of something in the blood that just doesn't go away.

Would it be useful to ask researchers to include a group of ME patients in their studies of other illnesses when these studies are potentially relevant to ME? A ME comparison group could be added to for example a study of neuromuscular function in patients with myasthenis gravis. This expands...

How will funding of bad BPS research be prevented? I think we need to assume that BPS people will exploit any loophole they can to get funding, and that they will have connections and friends that will overlook questionable behavior. Therefore tight rules to limit research efforts to biomedical...

In my opinion to change healthcare provider attitudes it's important to teach them that the CBT/GET paradigm was wrong. The negative attitudes stem in large part from the idea that patients are kept in a state of disability by their own thoughts and behaviour. That's the message of the CBT/GET...

Is technical problems a way to say Wessely problems?

Interesting ideas. One should ask the question why so many people very strongly want unexplained symptoms in others to have a psychological origin. By definition they are unexplained, which would normally mean that we don't know the cause. The impression is that this satisfies some kind of...

I would go as far as saying that there is a culture of believing in emotional trauma as cause of symptoms, in psychotherapy as a cure, and the ideology of psychosomatics that tears apart families, wastes time, and erodes the self-esteem of people struggling with poorly understood chronic...

Well done and thank you.