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If X is blocked by TG, it means that X is free to play with Y, Z and whatever mathematical formula they desire. X is also free to delve into chemistry and X is therefore a free radical. :nerd:

This is not the conventional way you do a literature review, just saying.

So they assume patients with fibromyalgia are in a bad mood? :arghh:

so incredibly sad as this is at the same time of year his son committed suicide just 2 years ago. He is a national treasure.

I am fixated on "cause". As in Long-Covid "causing" ME- In scientific term I am not sure we can advance this, this early. There are a few "wonky" issues to iron on: 1) The LC case definition is as wide as can be. It requires to have caught Covid, and to have residual symptoms 3 months later...

I would agree with this, but there is a go-around to performative empathy- It is to get all the patients together and bill them as group psychotherapy. The second go around is avoiding that and signing up the patients for group education where there will be a merry go round sessions of how to...

I would like to walk back what I said, at least partially. It is absolutely frustrating and upsetting to see how the most neglected diseases, and their sufferers are treated in health care. I cannot though put all health care professionals in the same boat. Some are going the extra mile to be...

LOL. Unbelievably real. Couldn't agree more. The patriarchal health care system still holding strong. It is the basis of all of the pain education programs. "We believe your pain will be better if you understand it's all your fault and by doing what we say, you will be liberated" So tired...

Very honestly, Kings College would be the last place I'd trust to donate my brain. That is where the worst of the psych lobby still works.

Please consider that it may not relate at all to ME and that one person can have multiple concurrent issues that happen at once, overlap, but may not link at all to ME. Here are a few conditions that are not related to ME but may occur concurrently: cancer, osteoarthritis, osteoporosis (which...

Indeed Burkitt Lymphoma has a very aggressive doubling time, bulky disease and can be quite devastating. I will leave it to the scientists to decide whether it is due to the vaccination but my understanding is that EBV is usually involved.

The same report or sub report mentioned fatigue as a mental health issue. That was disturbing. Fatigue when it comes to anything deemed biological (MS, cancer, Hep C is not mental health related. But fatigue when it comes to ME and LC, well that is mental health related. And that is wrong.

Really? Is this medicine of the future? What's next? Deer antlers?

Retroviruses, really? Please provide proof of this, other than XMRV of course :android:

Here is what acceptance and commitment therapy should be: The clinicians and researchers should all accept that fibromyalgia has been horribly neglected and that evidence for any pathophysiological process and for treatments is poor to very poor. The commitment should be no less than a moonshot...

Definitely, privacy is an ethical issue and patients need to be aware that there are lurkers in these groups. So, the evidence is saying that it is best for patients to stop fighting and simply accept. I want to see that paper and see how strong the evidence is. I would say that Facebook...

ABSTRACT Background Fibromyalgia (FM) is a diagnostically controversial syndrome characterized by chronic widespread pain, fatigue, sleep difficulties, cognitive dysfunction, and mental health symptoms. Though online peer support groups (OPSGs) may help persons with FM access support and...

Same author publishes this paper, different title: A multi-omics based anti-inflammatory immune signature characterizes Long COVID Syndrome It may be same paper, but edited after peer review? The abstract is not the same.

Add this on top of being told it's fibromyalgia and that it's all in your head and that you shouldn't go on disability and you should ignore your pain and exercise and carry on as usual. It's gaslighting over gaslighting and at every level of health care, whatever you are presenting for, you...

Keith Geraghty is chiming in in this thread: