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To be clear, I put mainland UK due to my knowledge of the issues with the specified areas. I'm not aware of any other such issues for any other area, so I'll now amend the detail in my original post to state UK (excluding Isle of Man and Channel Isles), instead of mainland UK only.

From the start of the project, we have supplied an FAQ on the website, this can be found here, https://www.decodeme.org.uk/faqs/ The specific entry for the exact criteria that is being used can be found here...

Because we are using certain research selection criteria to ensure, as best possible, we are taking samples from PwME, given the danger of misdiagnosis from GPs. Because there are issues with the Royal Mail tracking process to the Isle of Man that Royal Mail were unable to resolve, and Royal...

Highlights Gut microbiome was associated with multiple sclerosis (MS) risk and disease stage Distinct microbe-microbe interactions were found in MS patients Disease-modifying therapy modulates gut microbial communities The household recruitment minimized the dominant effect of diet on gut...

Abstract Background: The aim of this study was to measure the impact of post-acute sequelae of COVID-19 (PASC) on quality of life, mental health, ability to work and return to baseline health in an Irish cohort. Methods: We invited individuals with symptoms of COVID-19 lasting more than 14...

Abstract SARS-CoV-2 pandemic has caused a collapse of the world health systems. Now, vaccines and more effective therapies have reversed this crisis but the scenario is further aggravated by the appearance of a new pathology, occurring as SARS-CoV-2 infection consequence: the long-COVID-19...

Highlights Survivors of COVID-19 exhibit cognitive differences in specific domains Speed of processing, verbal, and reasoning are affected, but not memory function Performance in affected domains is linked to physical but not mental health These effects are observed in mild and hospitalized...

We do expect to be able to start advising people whether they have been selected to donate a saliva sample or not, and give a more general update, 'soon'; we are hoping for end of this week/start of next. I can say we are grateful to have had a fantastic response so far but, as we expected, we...

I've not listened to that particular interview so I don't know what was discussed but the primary aim of any interview about DecodeME and the launch is to get pwME to take part. An obvious secondary topic that is likely to come up is why this research is necessary, and in the interviews that I...

Simple Summary This article focuses on comparing two types of cognitive tasks (memory or arithmetic) while performing a physical task. The application of two simultaneous tasks is known as the dual-task paradigm. In fibromyalgia, its analysis has become of great interest since most of the...

Abstract Recent findings have associated different COMT genotypes with working memory capacity in patients with fibromyalgia. Although it is thought that the COMT gene may influence neural correlates (P2 and P3 ERP components) underlying working memory impairment in this chronic-pain syndrome...

Did she say that? That is kind of her if she did but she was being unnecessarily modest, the slides were her work, all I did was provide some suggestions to tweak them slightly.

I'm aware that I still owe you a full answer from your earlier query but in the interim, you can read what the Viking Genes study says about linking health records here, https://www.ed.ac.uk/viking/about-us/what-we-do/ehr-linkage (the relevance is that it is another GWAS conducted by the...

Thanks Natalie. If people have not seen an email by now then I'm afraid it will have been lost in a dark corner of the internet somewhere, and we are discussing how we might address this moving forward. In the meantime, if you are aware of anybody waiting to receive an email, please could you...

In a ten minute interview, I thought that Jennie and Chris did well to set the context of the terrible effect that ME can have on those with it and their family and friends. They also talked about how neglected and lacking in understanding, treatment options and research it has been, although...

Background: Irritable bowel syndrome (IBS) reduces patients’ quality of life and causes great burdens due to its unclear pathogenesis and criteria for diagnosis. This study aimed to explore the differences in prevalence and the influencing factors for IBS and its subtypes. Methods: The UK...

Highlights • Long Covid patients use language of gaslighting to describe physicians interactions. • Online survey shows experiences of dismissal, delayed diagnosis, and deferred treatment. • Medical gaslighting likely exacerbated by social inequalities in the United States. Abstract While we...

Background: Emerging evidence suggests that globally, between 30-50% of those who are infected with Coronavirus Disease 2019 (COVID-19) experience Long COVID (LC) symptoms. These symptoms create challenges with return-to-work (RTW) in a high proportion of individuals with LC. In order to tailor...

Background: The pathophysiology of long-COVID remains unknown, and information is particularly limited for symptoms of very long duration. We aimed to assess the serological, T-cell immune responses and ANA titers of patients with long-COVID-19 syndrome of 1-year duration. Methods: Prospective...

Our answer to that point is "If you take part in DecodeME, we won’t give you any information about your own individual genetic findings. This is because there are many practical and ethical issues that make it difficult to give personal DNA results to people who take part in research studies."...