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Can anyone think of any examples where the UK research funding bodies have, collectively or individually, either initiated or taken part in an awareness campaign which encouraged researchers to apply for funding from them for particular illnesses?

Is it? I thought that it was the opposite?

Our focus has been on the larger number of people that we need to recruit, so obviously that has been on the ME/CFS community. There has been some sharing from the LC community, but that has been more 'organic' rather than anything that we have focused on. Again, this will be something that we...

Great, thanks for taking part, and please do share widely and often if you can. And thanks for the suggestion. We always anticipated that we would have to work to reach the number of participants that we need, so our focus in terms of communications will shift more towards asking the community...

The DecodeME questionnaire asks about symptoms of both, albeit without asking specifically if someone has orthostatic intolerance.

Full title: An explanatory model of depressive symptoms from anxiety, post-traumatic stress, somatic symptoms, and symptom perception: the potential role of inflammatory markers in hospitalized COVID-19 patients Abstract Background The context of the COVID-19 pandemic has harmed the mental...

"People who are no longer able to work may also apply for Social Security Disability Insurance. To date, there has been no sustained increase in disability insurance applications since the onset of COVID-19. This is good news, though it bears watching as disability centers continue reopening...

More than 6 million people have died from COVID-19 worldwide, including nearly 1 million in the US.1 But mortality is not the only adverse consequence of COVID-19. Many survivors suffer long-term impairment, officially termed postacute sequelae of SARS-CoV-2 infection and commonly called long...

Abstract: Long COVID, in which disease-related symptoms persist for months after recovery, has led to a revival of the discussion of whether neuropsychiatric long-term symptoms after viral infections indeed result from virulent activity or are purely psychological phenomena. In this review, we...

Abstract Background Long Covid is recognised as a complex condition characterised by multiple, interacting and fluctuating symptoms which impact everyday life in diverse ways. The extent of symptom clusters and variability supports interventions that can accommodate heterogeneity, such as...

Abstract With increasing numbers infected by SARS-CoV-2, understanding long-COVID is essential to inform health and social care support. A Scottish population cohort of 33,281 laboratory-confirmed SARS-CoV-2 infections and 62,957 never-infected individuals were followed-up via 6, 12 and...

So I'm not sure how my refusal as a child to engage in the demands of late capitalism then matches with the relatively successful career I had in sales which I then had to give up as my ME got worse. I guess their view would be that in unconsciously denying my unconscious refusal led me to...

The Institute for Neuro-Immune Medicine at Nova Southeastern University, "a premier research and treatment center for ME/CFS, GWI and other related neuroimmune disorders", where Nancy Klimas is based is now offering cupping - "Cupping may look strange, but this pain-free treatment has been...

"Steve Gardner from Precision Life on the power of the =AZW4sE5GzzD-AF-sP0MbKc-i4DCvk8WS1wOn2E920_auNZ2gPj4VjSdf7XbXHOQ5YAgp7QeVttI9jBR0ZTc1odCT5JKRyxQYajgKkH84nw5UOl1eio7FyZ_ozP5WkAP7CEup--6Umm-QebOjuVlmuC_6jwp1YZTvg_fhNWOV4xOWU5w9LiQG5t1pCil1-3lmVPA&__tn__=*NK-R']#DecodeME questionnaire "The...

ABSTRACT Mental Health Practitioners (MHPs) have a unique opportunity to provide resources and support to those suffering from Long COVID (LC), the post infectious illness that often follows an acute SARS-CoV-2 infection. In working with these individuals, MHPs can learn from the experiences of...

Abstract Understanding the mechanisms of coronavirus disease 2019 (COVID-19) disease severity to efficiently design therapies for emerging virus variants remains an urgent challenge of the ongoing pandemic. Infection and immune reactions are mediated by direct contacts between viral molecules...

Key Points Question Among individuals who had symptomatic SARS-CoV-2 infection in 2020 and 2021, what proportion experienced common self-reported Long COVID symptom clusters 3 months after initial infection? Findings This observational analysis involved bayesian meta-regression and pooling...

A supporter of the study has independently produced this short film promoting the study.

Please share if you can. "Wow, 18,000 registered participants. 13,500 completed the questionnaire = a huge dataset on ME. Not everyone will be invited to provide a DNA sample so we need your help to #DecodeME. Help us now to recruit to the world’s largest study for people with #MECFS"...

No, it's not. It is encouraging desperate sick people to take something that they think is a treatment, and to report back in order to influence other people as to what the 'right' dose is. It's unethical and dangerous. We've seen it before with various 'cures', and no doubt will see it again...