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I don't think the logic of an ever increasing number makes sense. For every disease that doesn't have unusual factors leading to increased or decreased incidence, there should be a steady state of prevalence where new cases are balanced out by older cases dying, whether of the disease or other...

It looks from the abstract that this was done with healthy participants, and seems to be saying if a cognitive task is mentally tiring, people slow down and go for accuracy rather than speed, and after the task their physical function (hand grip) decreases. Surely this shows that even healthy...

I think prevalence was probably pretty stable for a long time, but surely now with many people meeting ME/CFS criteria following Covid infection, the prevalence may have at least doubled.

That sounds really well organised and effective. We'll done.

While I agree individuals should have a right to make their own decisions about their lives, I think we can only make genuinely autonomous decisions if we are also provided with the care and support we need to live with our disabilities or illnesses in the best way possible, and there is...

Does anyone know who, or which group is proposing this?

This is just silly. What on earth useful information do they think they can get from a long list of sentences including the word 'rest', some of them sensible, some completely daft. I assume they have designed some sort of grouping into symptom severity, behaviour, what you can and can't do...

Well, what a surprise, women are more likely to have menstrual pain than men. Hold the front page.

According to News Medical Life Sciences, however, the symptoms do improve after two years. From the conclusion of the linked article:

I agree with all of this post. How dare they whinge about their badly run and unscientifically reported study being not well received. How dare they compare their discomfort with being told they got some things wrong, and their slightly bruised egos, with the suffering of millions of sick...

Which makes it all the more concerning that the MEA are working with BACME to produce materials for use in ME/CFS clinics Yes, of course I agree it will take far more than a letter to get fundamental change. Disbanding BACME seems to me to be the only real solution.

Apologies for getting the name wrong. Thread here: UK: ME Local Network

Thank you, @Simon M for the article and @chillier and Audrey for your work. It is such important work. We need to know whether the hopes that have been raised by several tiny studies about 'something in the blood' can be replicated. In terms of funding, I would hope that UK government funding...

Some posts have been moved to: Covid vaccination - bad reactions, vaccine injury, and access to paxlovid.

Some posts about a different type of nasal spray have been moved to a new thread Efficacy of a Nasal Spray Containing Iota-Carrageenan in the Postexposure Prophylaxis of COVID-19 in Hospital Personnel.., 2021, Figueroa et al

Efficacy of a Nasal Spray Containing Iota-Carrageenan in the Postexposure Prophylaxis of COVID-19 in Hospital Personnel Dedicated to Patients Care with COVID-19 Disease, 2021, Figueroa et al Abstract Background Iota-Carrageenan (I-C) is a sulfate polysaccharide synthesized by red algae, with...

They have not been on the forum since 2020, so you may not get a reply.

Altered X-chromosome inactivation predisposes to autoimmunity CHRISTOPHE HURET, LÉA FERRAYÉ, ANTOINE DAVID, MYRIAME MOHAMED, NICOLAS VALENTIN, FRÉDÉRIC CHARLOTTE, MAGALI SAVIGNAC, MICHELE GOODHARDT, JEAN-CHARLES GUÉRY, CLAIRE ROUGEULLE, AND CÉLINE MOREY Abstract In mammals, males and females...

This is where I think longitudinal studies are needed, with good quality wearable motion sensors and heart rate and hrv monitors, and apps to record easily symptoms and activities, including cognitive activity every day across months. If all the data is recorded instantly via the app, then it...

None as far as I know have broken ranks to tell us what's going on. We await Hilda's next move. If anyone on the IAG is reading this, perhaps you could have a word with Hilda asking her to post an update, even if it simply says she is still waiting for some specific action by Cochrane editors...