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  1. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    A trick of a sort on a Facebook group is an admin can write @everyone and all members get a message that they are tagged in the thread. A lot of messages to a Facebook group are only seen by a small number or percentage of members. Doing this would dramatically increase the numbers who would...
  2. Dolphin

    Suramin as a possible treatment for Autism, ME CFS and Long Covid

    PaxMedica Releases 2022 Shareholder Letter https://www.globenewswire.com/news-release/2023/02/15/2608576/0/en/PaxMedica-Releases-2022-Shareholder-Letter.html Only mention of ME/CFS: “I’d like to close by thanking the team and the Board of Directors for their hard work and insight in our first...
  3. Dolphin

    Closed 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Published thesis: https://www.s4me.info/threads/a-narrative-inquiry-into-the-school-experiences-of-teenagers-living-with-me-cfs-2022-lewis-dedpsy-thesis.31964/
  4. Dolphin

    A narrative inquiry into the school experiences of teenagers living with ME/CFS, 2022, Lewis (DEdPsy Thesis)

    Thread when this was recruiting: https://www.s4me.info/threads/2022-uk-recruiting-narrative-inquiry-exploring-the-school-experiences-of-teenagers-with-me-cfs-doctoral-research.24966/
  5. Dolphin

    A narrative inquiry into the school experiences of teenagers living with ME/CFS, 2022, Lewis (DEdPsy Thesis)

    Source: University of Bristol Date: December 6, 2022 URL: https://research-information.bris.ac.uk/en/studentTheses/a-narrative-inquiry-into-the-school-experiences-of-teenagers-livi https://research-information.bris.ac.uk/ws/portalfiles/portal/349168131/Final_Copy_2022_12_06_Lewis_M_L_DEdPsy.pdf...
    • Dolphin
    • Thread
    • education patient experience school young people
    • Replies: 1
    • Forum: ME/CFS research
  6. Dolphin

    Preventing avoidable malnutrition in severe ME

    (12 minutes) 25% ME Group at The Malnutrition Task Force Sharing Practice Day Our advocacy worker, Helen Baxter, did a talk on preventing avoidable malnutrition in severe ME at The Malnutrition Task Force Sharing Practice Day. The Malnutrition Task Force focus on malnutrition in the elderly and...
  7. Dolphin

    Long Covid in the media and social media 2023

  8. Dolphin

    News from Finland

    Moved post
  9. Dolphin

    USA: News from the Bateman Horne Center

    Free, professionally-facilitated online support group meeting https://batemanhornecenter.org/event/online-support-group-42/ Tuesday, February 21 1 PM MST/8 PM Great Britain & Ireland Find the time in your time zone here...
  10. Dolphin

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    =AZXwHv0elOAkGgFKz5CaN3CZUrALy5NuYuZ6RwIIjs3rcW178dTZpH8R6wITPzEt8wZJNNYCJv234bVvxIq-ocBMwlMu-MU3kqjrMpZAl-waXYY9KU20A4NA-GpLbPJrpstlBB4aHex7FaneGHNItDcyXG-oObOv7r0sxdpdIhaf8uDnxNnmWqrWM2m4Zter1pU&__tn__=-UC%2CP-R']ME Association · Learna...
  11. Dolphin

    Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al

    Pay-walled https://www.newscientist.com/article/2358189-chronic-fatigue-syndrome-linked-to-lower-levels-of-some-gut-bacteria/
  12. Dolphin

    United Kingdom: Action for ME (AfME) news

  13. Dolphin

    Long Covid in the media and social media 2023

    (Paywall) I tried the new test for long Covid Francesca Steele suffered fatigue and flu symptoms for a year after she had coronavirus. Now she’s taken a new private blood test, what would her diagnosis be...
  14. Dolphin

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    Copied post (Paywall) I tried the new test for long Covid Francesca Steele suffered fatigue and flu symptoms for a year after she had coronavirus. Now she’s taken a new private blood test, what would her diagnosis be...
  15. Dolphin

    Long Covid in the media and social media 2023

  16. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    That’s good news in a way.
  17. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    I’m guessing the 23,000 would include some people from other countries who were encouraged to sign up at one stage?
  18. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    The UK has a great network of local groups, lots of Facebook groups along with national groups with significant reaches. And a lot follow ME/CFS news on social media (someone said once possibly a similar number to the US: last time I was able to access figures I had more followers on Twitter...
  19. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    No:
  20. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    Note it says: Not everyone will have returned their sample and as I understand it, not all submitted samples can be used.
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