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Here's the original article from the Medical Independent. A lot of it is very similar until towards the end when he starts talking about cardiac MRIs and post viral fatigue/postviral syndrome https://www.medicalindependent.ie/gp-i-physically-couldnt-lift-my-phone-and-make-a-phone-call/ ---

With over 100 retweets already, Elisa Perego's thread is getting a lot of coverage on Twitter. I could easily imagine this angle ending up influencing discussions in the long Covid community more generally including in their private discussion forums. Some of us remember how they wanted to...

Last time I heard, she was saying that she didn't have ME/CFS-type symptoms i.e. the research being quoted isn't saying that *she* has "chronic fatigue syndrome". Indeed, none of the research is saying that everyone with long Covid has "chronic fatigue syndrome".

Thinking about it, Myalgic Encephalomyelitis doesn't get across a cardiovascular angle, including deaths, which is what she is complaining about. I don't trust her.

Thread with update

This patient has on and off being trying to distance Long Covid from ME/CFS for approximately 18 months though her specific motivation here is unclear: I don’t accept this [i.e. bit about privileged bubble.

Interesting points, @CRG. Certainly all improvements in a placebo arm shouldn’t be attributed to a true placebo effect. An important issue is what might bring out different levels of fastidiousness in the active and placebo arms. It would seem to be theoretically possible that people who got...

https://pubmed.ncbi.nlm.nih.gov/34319275/ 2021 Nov 1;116(11):2279-2285. doi: 10.14309/ajg.0000000000001395. Peppermint Oil Treatment for Irritable Bowel Syndrome: A Randomized Placebo-Controlled Trial Judy Nee 1, Sarah Ballou 1, John M Kelley 2 3, Ted J Kaptchuk 2, William Hirsch 1, Jesse...

https://thorax.bmj.com/content/thoraxjnl/76/Suppl_2/A19.1.full.pdf IS A NOVEL DIGITAL BREATHING & ENERGY MANAGEMENT PROGRAMME EFFECTIVE IN REDUCING SYMPTOMS OF LONG COVID? J Moore, J Plumbe, N Hilliard, K Plumbe, N Beckett, T Burch, K Bahadur. Respiricare, Kent, UK...

https://www.sciencedirect.com/science/article/pii/S1876034121003786 Journal of Infection and Public Health Available online 18 November 2021 Original Articles Long Term Predictors of Breathlessness, Exercise Intolerance, Chronic Fatigue and Well-being in Hospitalized Patients with COVID-19: A...

I don't think this has been posted before The power of power, narrated, and naming things that are so numerous we know longer see them. The Journal of Cognitive Analytic Therapy, Summer 2020 https://indd.adobe.com/view/609fdba1-b9d8-4220-b877-1824b6b75f0a Open on double page spread 18 of 30...

I'm afraid I'm not sure how easy I could do that at this stage. It relates to this cohort: Chronic Fatigue Syndrome – A clinically empirical approach to its definition and study https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-3-19 At the time I used to look at the CAMDA papers...

The long and short of it – ‘Long-Covid’ is not unique in viral illnesses Immunologists don’t know for sure why SARS-CoV-2 causes extended ill health https://www.irishtimes.com/news/health/coronavirus/the-long-and-short-of-it-long-covid-is-not-unique-in-viral-illnesses-1.4731144

Looks like there are some paper signatures also: https://www.facebook.com/CFSHilfe/posts/1371045363314532

I’m grateful to Dr Marks for all the time and energy he has been putting into work on the topic. In the case of this blogpost, I think a lot more points could have been made critiquing the SMC comments and the PACE Trial itself: perhaps people will add some in the comments on the blog (I’m not...

I signed it but as the real focus is on people in Austria, I’ve concentrated on sharing German-language info on Twitter and Facebook (Facebook automatically translates it so not such an issue there). If one sticks the link info the Twitter search bar, one can find tweets that link to it. It is...