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Arguably the most important time for a total is when the target is close to being reached: one doesn’t want to put in too much effort that is not required (i.e. if a target has been reached). At the moment, we are clearly a long way from reaching the target so everyone should be trying their...

Just released: The Final episode of M.E, Myself and I Episode 6: Love This is a low-budget dramatisation of the (fictional) life of a young person with ME

Good to see that they are not messing around with open-label trials as they have sometimes done in the past. This looks more useful e.g.

I saw this post on Tumblr. Despite the tags that the poster uses my guess is that the character doesn't have ME/CFS. But other people have posted chronic illness characters in this thread so I thought I might also. ----- The Strange Case of Starship Iris (@iriscasefiles) is the most wonderful...

Seems a bit odd to me that this paper only has one author and the author doesn't even live in the Netherlands.

Thursday April 20 #MEACTION GEORGIA SUPPORT CALL https://www.meaction.net/event/meaction-georgia/2023-04-20/ This free support online call is open to people around the world. 1PM EDT/6 PM in Great Britain & Ireland Find the time in your time zone here...

Executive Summary Page for MPs A summary of the work of UK charity Invest in ME Research and researchers in Norwich Research Park in developing a UK/European Centre of Excellence for Myalgic Encephalomyelitis (ME or ME/CFS 1) by facilitating and initiating world class research...

ME/CFS and post-exertional-malaise among patients with Long COVID. https://faculti.net/me-cfs-and-post-exertional-malaise-among-patients-with-long-covid/ Recording of a talk by Prof Jason. Looks like requires free registration.

I haven't listened myself. Fresh RB Podcast: Everyday People, Talking Health. Episode 43 **TW: Mentions Attempting Suicide** ME Association 651 subscribers 41 views 4 Apr 2023 #PVFS #MECFS #COVID19 Fresh RB Podcast: Everyday People Talking Health: Getting To Know ME - Accepting &...

Do we know the current service has biomedical doctors or indeed many hours allocated for any sort of qualified doctors? This relates to the past: I think last time I heard it was headed by a psychologist?

I think I’m right in saying she has had ME.

#Raspberries4MECFS Social Challenge to support the work of Dr. Alain Moreau's RAman SPectroscopy BiomarkER-Based DiscoverY (RASPBERRY) & Dr Morten...

Turns out it is also to fund Dr Morten's research. I will adjust the heading.

Here's information from the account. Well done and thanks to them for trying: Severe ME/CFS patient. Cannot speak. Bedridden. Stranger things have worked. I remember there was the chilli challenge for ME which raised quite a lot.

Saturday, April 15 ME CAREGIVER SUPPORT CALL https://www.meaction.net/event/me-caregiver-support-call/2023-04-15/ 3:30 PM EDT (US)/8:30 PM in Great Britain & Ireland Find the time in your time zone here: https://www.meaction.net/event/me-caregiver-support-call/2023-04-15/ ======= Please join...

#Raspberries4MECFS Social Challenge to support the work of Dr. Alain Moreau's RAman SPectroscopy BiomarkER-Based DiscoverY (RASPBERRY) & Dr Morten...

https://www.raspberries4mecfs.com/ If someone wants to add more info, feel free.

Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-45/ Tuesday, April 11. 3 PM ET/8 PM in Great Britain & Ireland Find the time in your time zone here...