Search results

Two muscle biopsies is tough. Obtaining a sample worth analysing is a pretty invasive procedure. The scars are likely to be permanent. I would like some sort of reassurance that this is more than just blind hope that something will turn up.

@MEMarge, The article by a UK RCGP person and Glasziou on HANDI is 2019. So presumably GPs have had access to this for a while. When you say 'linked article' which one did you mean? Is there some new reference to HANDI from RCGP? The examples given in the cited article by Simon and Glasziou...

They may have trouble getting anything funded without NICE approval but this looks like a disaster in line with so many others. They want to create the RCIQP (Royal College of Independent Quack Practitioners). Judging by how miserable they sounded in Pulse maybe they should just look for another...

I can't see any information on what the study will do. Is that because it is commercial?

This lady works for a private rheumatology clinic in Oz called BJC. Not hard to see why she has an article in Guardian Aus looking at her blurb: Sarah is the manager of our Allied Health team at BJC, and also heads up our Marketing team. She has also been a director of BJC Health since 2018...

I think this article raises some important issues. The vagueness of FII is a concern that I know Nigel Speight has strong views on. My impression from listening to the president of the RCPCH is that the establishment view is very blinkered and simplistic. On the other hand I think there is a...

Ah, yes, I saw that one. Quite a lot of doubtful citations there.

Where was it cited?

I am thinking of inventing an organisation called nonaQ. This is for people who didn't think anything shifty was going on but discovered that there was - sort of stsiroeht ycaripsnoc.

But surely nobody actually wants to go into a rehab unit unless there is no alternative? GPs referring to specialists for outpatient care is the ideal situation. The problem is just that there isn't much to offer. I wouldn't compare to head injury. Most people with head injuries in rehab units...

I am in two minds about this. I agree with what you are saying. On the other hand my experience of 'care plans' is that they are used to dump the responsibility on the patient. There was a care plan for my wife when she was ill which just meant that I had to spend hours trying to contact...

The problem is that professionals working in rehab units have a belief that exercise is good for everything. If following the ME/CFS guidelines means anything useful it is being pragmatic and advising people on the basis of experience gathered from patients without any beliefs about exercise. As...

It seems pretty bizarre that a service for an illness should say it cannot deal with severe cases! It is a bit like a surgical service saying they are happy to see patients but they don't do operations. Maybe the proposals on implementation from NICE will make things a bit clearer, maybe not.

After quoting NICE to OT who was bewildered about a ‘care plan’ the manager takes me on and writes letter (no care plan) to my GP. Referred to The Brain Charity but looking like they will offer counselling only. Told come back only if you want to accept the three seminars. I never expected...

There is a geezer called Giza who thinks there is but the literature is mostly limited to reviews by him or sports journals. It sounds like pseudo stuff to me. What Nicola C-B say is interesting. I agree that viral reactivation is speculative. On the other hand it may be at least that in PEM...

I think we should wait and see what comes on Monday. It may be a lemon.

I agree that it is highly plausible that 'post-concussion syndrome' is ME precipitated by relatively limited head injury. Exertion intolerance could be used to apply to respiratory or cardiac failure but it has acquired a 'term of art' status such that it makes sense to restrict it to the sort...

Interesting. What a lot of unhappy bunnies! I was also interested to see that Gerada is not flavour of the month with many colleagues. Things worked quite well in the 1980s when we could send out nurses and do our own domiciliary visits from hospital units, as well as being able to cross-refer...

I am not clear what 'services' (i.e treatments) you are referring to. Dispensing drugs does not require a rehab unit. Moreover, there aren't any drugs specifically for ME. Sleep medicine units may provide a diagnosis service but I don't know what treatment they can offer. There is no agreement...

I am a bit unclear as to what is being raised here. Rehabilitation units exist, mostly for strokes and head injuries but the same units also see people with ME and give them exercises. The Royal College of Physicians (actually Dr Turner-Stokes) has complained that the guideline does not...