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  1. Jonathan Edwards

    [FND]: Extending the diagnosis to other disorders, and proposing an alternate disease term—Attentionally-modifiable disorder, 2022, Mark

    My tinnitus is attention dependent My carpal tunnel symptoms are attention dependent My postural kyphosis is attention dependent My sciatica is attention dependent My melancholy is attention dependent (when its there) My scalp itching is attention dependent My eye floaters are attention...
  2. Jonathan Edwards

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I received this from NICE: Dear Jonathan You will be aware that following the roundtable workshop held on October 18th 2021, which you attended on behalf of Science for ME, Gill Leng, in summing up, stated that NICE would work with system partners and stakeholders to explore: Issues around...
  3. Jonathan Edwards

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I went to Curry's yesterday to see if me daughter's inkjet printer (under guarantee) was mended and ready for pick-up. Curry's apologised and said that Canon had not even come to collect it. So they offered me a free replacement. Maybe we should get a free replacement on this review?
  4. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    It is interesting to read that column of comments. I don't think RCGP can hope to compete with NICE. The power structure would not allow it. But I think things are changing. I think GPs are beginning to realise that they are in an anachronistic and moribund branch of the profession. Much of it...
  5. Jonathan Edwards

    Article: Science: The Calorie Counter

    Well to be fair doing maths I think - which might be stressful for;) non-maths teachers!
  6. Jonathan Edwards

    Article: Science: The Calorie Counter

    I am a bit doubtful about this guy's facts. Mike Stroud and Randolph Fiennes knew how much food they had and how many calories they were burning on their way to the South Pole. My memory is that they found they were burning 7000+ when their sled only had enough for 6000 a day. I am not sure...
  7. Jonathan Edwards

    Vagus Nerve Stimulation

    To continue the autonomic metaphor I wouldn't hold any breath. This idea has been going for nearly twenty years and the best they could do was: “The first trial was designed to assess the safety of this new device, and we were fortunate to have seen some efficacy in this 14-patient trial of...
  8. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    Interesting to compare the way people support their claims that NICE was biased. Sometimes in a GP journal citing the Romanian Journal of Experimental Psychotherapy (or some such). Sometimes in the Lancet citing a website thread from a patient organisation whose chairman (?) is a...
  9. Jonathan Edwards

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The criteria are designed to indicate how medical personnel can identify ME, not as a full description of ME. The two things are quite different. Criteria for identification often do not include many common features of an illness because they do not discriminate or are not defining for the...
  10. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    The editor mentioned that he had consulted with members of the editorial board. That I: EDITORIAL BOARD Dr Luke Allen, Department of Clinical Research, London School of Hygiene & Tropical Medicine Prof. Carolyn Chew-Graham, School of Primary, Community and Social Care, Keele University Dr...
  11. Jonathan Edwards

    Evaluating case diagnostic criteria for ME/CFS: toward an empirical case definition, 2022, Conroy, Jason et al

    I don't really understand what this paper is trying to do. Diagnostic criteria are designed to distinguish people with a condition from those without it. To judge the usefulness of criteria you presumably need to look at both groups and see what the sensitivity and specificity is. As far as I...
  12. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    I suspect the editor thought it was a good piece of NICE-bashing and standing up for GP rights. I think they may have unpublished it when I raised the ethical issues over treatment of children. Stepping outside NICE guidelines is not necessarily something reprehensible but when it comes to...
  13. Jonathan Edwards

    Endometriosis: A Retrospective Analysis of Clinical Data from a Cohort of 4,083 Patients, With Focus on Symptoms, 2022, Signorile et al

    The paper is published in something called In Vivo I have never heard of. The huge range of highly technical papers published makes it look as if this may be where you publish stuff the real journals don't take.
  14. Jonathan Edwards

    Endometriosis: A Retrospective Analysis of Clinical Data from a Cohort of 4,083 Patients, With Focus on Symptoms, 2022, Signorile et al

    The list of tests looks almost as much a mess as the symptoms analysis. The problem is that we have no idea who gets referred to this centre and probably not what tests would show in the asymptomatic population.
  15. Jonathan Edwards

    Endometriosis: A Retrospective Analysis of Clinical Data from a Cohort of 4,083 Patients, With Focus on Symptoms, 2022, Signorile et al

    No it doesn't, because you have done the study back to front. To clarify things you need to do a population cohort study with blinded objective testing for pathology is gold standard. This looks like an extreme version of the concerns I have had about DecodeME - which I now think for DecodeME...
  16. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    I received an email from the editor saying the article had been unpublished, but giving no analysis or apology. I think there is a strong groundswell of opinion amongst the 'chattering' GP class that would support the article - really not so very different from the sort of disinformation...
  17. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    As I say, I don't know the rules, but sure it is very problematic. As is including a bit on Christians with a lady priest and the mention of the daughter's illness. I actually worry that this lady has a sort of 'Dr Munchhausen syndrome'. She may need help before she causes a lot of harm. But I...
  18. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    I have mentioned the website to the editor of the journal. He emailed me asking to speak on the phone but my hearing does not make that realistic so I suggested he emailed his thoughts. Nothing so far.
  19. Jonathan Edwards

    UK Dr Anna Chellamuthu, GP and Lightning Process practitioner, and her article in a GP journal

    It gives sources for the Phil Parker ASA complaints (page 7 of the thread)
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